After 6 months of not being able to stay on any medications due to severe platelet reductions, I am being prepared to have to go through the stem cell transplant process. I was only able to stay on Sprycel for 2 weeks at 20mg before my platelets fell below 10,000. I am in CHR w/no evidence of cml but my FISH came back still at 100% ph positive.
I am considering working with Dr. Cortes or Dr. Talpaz to see if there are any other clinical trials I can become part of but don't qualify for Ponatinib because of having a severe rash on Tasigna.Doing the stem cell transplant now gives me the best chances of doing well but the GVHD is the biggest concern. Either way, if we don't treat this somehow, the battle will be lost anyway you look at it.
Any thoughts on this and recommend good transplant hospital. As of now, I will go through Moffitt in tampa for my transplant.