I have been having a pain in my side pretty much identical to the pain I had at diagnosis. The pain started earlier this week but was sporadic. It has been pretty much a constant dull ache since yesterday (worst last night while trying to sleep, just like when I was diagnosed). I went to Urgent Care today for a CBC and everything looked fine from that stand point. My WBC was 6.8, RBC 4.35 and platelets 225.
My history: Diagnosed 7/9/10 (went to dr for pain in side that turned out to be enlarged spleen due to WBC of 149 & platelets were 1300). Started Sprycel 100 mg mid to late July; have been PCRU since September or October (I think October -- don't have my folder with me). I do know I had PCR tests Oct, Nov, and Dec that were all 0,000. I had another March 2011 from a different lab (had to switch onc. due to insurance) that was also 0.000 PCRU. I am still taking 100 mg Sprycel. The doctor at Urgent Care was pretty much useless (did not even listen to my heart or lungs or try to feel or push on my side or anything. He told me he had no way of telling if my spleen was enlarged. ??? I live close to Louisville, KY, and today was Derby Day so I am assuming he was the bottom of the barrel and didn't want to be there. Yeah, and I was there for 4+ hrs for all that useful information.)
1. At what point should I become concerned? Should I call my after-hrs oncologist # or just wait until Monday to call? I was going to call if my CBC was abnormal today.
2. Should I continue to take my Sprycel?
3. Why would I be having this much pain and why now? Oh, and I typically have a high tolerance for pain -- I had both children naturally with no epidural so this is not just me being wussy. I hate needles! But I can handle pain. :-)
I do have sporadic muscle and bone pains that come and go (in my arms mainly and sometimes in my ribcage area if I have had a long day), but this seems like my spleen to me. It is in the exact spot as before and feels the same.
I tried to search for related posts but most discussed pain/enlargement at diagnosis ... not 10 months into treatment.
THANKS for any words of wisdom you can offer!