I talked to my VA oncologist yesterday and he was taken aback by the severity of my side affects. After talking about it (I like him more than the town doctor I have been seeing, she only has three patients with CML, but he has a lot more experience), he wants me to try Sprycel(?) and see what happens. He went over the major side affects and the danger spots (water in the lungs, major headaches) with me and gave me a lot of literature to read up on the subject. He went over Tasigna with me and after hearing his experience, I don't think I will ever want to try it. So, if Sprycel makes things worse, he said he will put me back on Gleevec and probably put me out on disability. He says that there's no "ryhm or reason" that can be pinpointed for the differences or severity of side affects that each person experiences on Gleevec, but I was in such pain yesterday when he saw me that he was really concerned. It started Sunday afternoon at the family get-to-gether, steadily got worse until I had to leave midway through it, and I couldn't go to work Monday or yesterday. I tried today and only lasted 2 1/2 hours before I had to come home.
Anyway, and advise having to do with taking Sprycel would greatly be appreciated. I probably will not get it until next week in the mail and he said to wait until my weekend to start it in case I have a really hard time with it at first. Sorry I haven't been involved much lately in all the fun...there's just...things...
Take care, God bless!!!