WOW...glad I never had one at diagonsis. I had my first ever bone marrow test yesterday....my bone is still sore! Apparently I have very strong bones since the doctor had to use 2 different needles to get through the bone...my husband said I'm a trooper since he witnessed it! The doctor even asked if I drink lots of milk .
Asked about the fatigue - doctor admitted it could be from the tasigna although said that I'm his only patient who has really complained about it...but then he also mentioned that I'm his youngest patient. So we are thinking since I am go-go-go all the time because I have to be with working, kids, husband, baseball for the boys, that my body doesn't get any down time and therefore between the tasigna and my life - its wearing on me. So I did feel a little better mentally after we discussed that. Asked about decreasing the dosage - he said no - I'm on the minimum there is. He asked if I wanted to switch to a different med if the fatigue is that difficult. I said not at this time - because its more annoying than difficult. I have difficult days - but not weeks/months. Besides, I explained, I think all the TKI drugs have fatigue as a side effect so I might as well keep trucking along with what I know works.
So I go back in 3 months...get labs every month. Will get the PCR and cytogenics of the bone marrow test back in about 10 days. He said as long as that is zero or close to zero, he doesn't expect to need to do another bone marrow test! The rest of the time we'll do PCR through labs. Thank Goodness! Don't want to do THAT again!
Here's hoping for the BIG zero.....