Does anyone know of a BC CML specialist in the midwest? A family member was diagnosed in this stage just a couple of days ago. I am trying to research as much as I can. He is currently on Dasatinib and in an Indianapolis hospital.
BC CML Specialist
Posted 24 April 2011 - 07:22 AM
Dr. Moshe Talpaz at the University of Michigan Cancer Center. Contact him immediately, he will get back to you.
|Academic office address||University of Michigan Comprehensive Cancer Center|
1500 East Medical Center Drive
Ann Arbor, MI 48109-5936
|Academic office telephone:||(734)764-8195|
|Academic office FAX:||(734)647-9654|
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
Posted 24 April 2011 - 09:35 AM
Dr Talpaz is one of the best available. He treats some of the more difficult cases for people here.
Blast Phase CML is a tough issue. The problem is that the CML has been able to change its form into something that is more difficult to control. The drugs may work, especially Sprycel (dasatinib), but they may not work for very long. Often the drugs are used to stabilize the patient prior to a bone marrow transplant. For those diagnosed in Chronic Phase, the drugs keep us in Chronic Phase where the CML remains controllable by preventing disease progression.
Another thing to consider is to get a second opinion on the Blast Phase diagnosis itself. The issue is not always as clear cut as someone might think. There are variables that might cause a less experienced Onc to diagnose Blast Phase while more experienced Oncs would understand that the case is not so bad. So Dr Talpaz is an excellent choice because he is so experienced in treating all types of CML.
If you wanted to post the BMB report results, we could comment on the issue further. If you would like me to read the report and comment, I have often done that for people here.
We wish your family well. Let us know if we can help further, and please keep us informed. We can all learn by the experiences of others, and we could benefit from your inputs on advanced stage CML treatment.
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