New to the site. Been living with CLL since dx in 2004, still in W&W, with the WBC now up around 180k. Until recently, counts had only slowly crept up, then suddenly more than doubled in about 6 months. However, they was no increase in nodes, and the platelettes had increased, along with some spleen swelling. Oncologists ran another set of FISH and Flow tests to figure out what was going one, and perhaps get the baseline for the CLL treatment regimen. Found some of the original CLL bad prognostic markers had disappeared, but the CLL was still there. However, CML had made and appearance also?? Oncologist and I, plus the oncology staff at my medical center were quite surprised. Anyway, seems I am somewhat of a medical oddity now. After much head scratching, it was decided to try and treat the CML first, and perhaps see if the CLL wasn't as advanced as thought. Have just started the imatinib (Gleeve) for the CML, but still doing nothing for the CLL. Have had no noticeable reaction to the imatinib. Going in for a recheck in about two more weeks. Still feel well, and remain active, even flying my glider and riding bikes. Question is, has anyone else had the particular combination of two leukemias, and what were the treatments offered?
CLL dx 2004
CML dx 2011