Hello everyone,
My name is Shiela, I am 25 years old and just recently (March 14, 2011) my husband got diagnosed with CML two weeks before his 27th birthday. We had just gotten married last August, living on our own, and I just started a new job while he was finishing up a few more classes to get his massage license, so the news was completely overwhelming. At that time I knew very little about CML - I've only heard stories, saw movies, etc., so I've been doing a bit of research here and there. During his first blood check, my husband had a wbc count of 270,000 and after 4 weeks on Tasigna, his count is now back to normal. I had no idea though that he would be taking Tasigna long term and he is under my insurance but we would still have to pay about $4,000/month. This is impossible for us, especially with just one income. So, we moved in with his mom so we could save money. We have filed for my husband to get disability, looked into some organizations, talked to various people. I just wonder - what else can we do to get financial support? Any advice is greatly appreciated!
~Shiela