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My two-year rant...


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#1 RJF

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Posted 15 April 2011 - 02:15 PM

2 years ago today I was diagnosed with CML, so I claim this as my cancerversary.  My inlaws (Breast & Bladder - not their names but types of cancer)  both celebrate theirs as the day they were told "you no longer have cancer".  With CML and TKIs, do we celebrate the day we were told "you have LESS cancer, but we assume there are still these quiescent stem cells..."?  OR, are we forever in this cancervesary limbo?  So tonight, for the second year, I will go out to dinner with my lovely wife and celebrate the diagnosis of my CML.

Most of my friends do not know of my situation (the CML, not the cancerversary conundrum), and I am glad for that.  They hold me to the same high standards as thier cancer-free friends.  In the whole sceme of things, I look around and feel blessed that this is the only drama in my life.  A 400mg magic pill which, on occasion, disrupts my day with cramps, stomach growls and butt-clinched jogs to the bathroom (usually in that order).  It could be worse, as a lot of my freinds are dealing with some more delicate issues.  My first post here, someone told me - everyone is sitting on a pile of crap, some piles are larger than others.  I feel blessed that mine is a shart.

Yes, I know my vein is like a rubberband, but why can't someone find it on the first try.

You are the same guy who told me that the BMB would cause some "discomfort".

Please pass the milk....oh wait...nevermind.

Someone needs to add "cancerversary" to the spell check on this site.

2 years and counting....

RJF



#2 MomMom

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Posted 15 April 2011 - 02:27 PM

Congratulations on your cancerversary!  I have mine July 21 when it will be 3 years and counting.  I wouldn't say it is a joyful occasion, but I can enjoy that I am still here to celebrate if I can locate the bathroom in the restaurant and find a table nearby!  I skip the salad and go straight to the steak and wine.

Happy Cancerversary to all of us.  A toast to those who love us and understand and a shart to those who don't!

MomMom



#3 CallMeLucky

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Posted 15 April 2011 - 02:53 PM

Congratulations on this day of mixed emotion, I am sure it is bitter sweet.  Glad you are with us.

(Congratulation to B&B too)


Date  -  Lab  -  Scale  -  Drug  -  Dosage MG  - PCR
2010/Jul -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 1.2%
2010/Oct -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.25%
2010/Dec -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.367%
2011/Mar -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.0081%
2011/Jun -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2011/Sep -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.00084%
2011/Dec -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Mar -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.004%
2012/Jun -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Sep -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Dec -  MSKCC  -  Non-IS  -  Sprycel  - 100 - 0%
2013/Jan -  Quest  -  IS  -  Sprycel  -  50-60-70  - 0%
2013/Mar -  Quest  -  IS  -  Sprycel  -  60-70  - 0%
2013/Apr -  CUMC  -  Non-IS  -  Sprycel  - 50 - 0.036%
2013/May -  CUMC  -  Non-IS  -  Sprycel  - 50 - 0.046%
2013/Jun -  Genoptix  -  IS  -  Sprycel  - 50 - 0.0239%
2013/Jul -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0192%
2013/Jul -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0034%
2013/Oct -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0054%
2014/Jan -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0093%
2014/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0.013%
2014/Apr -  Genoptix  -  IS  -  Sprycel  - 100 - 0.0048%
2014/Jul -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2014/Nov -  Genoptix  -  IS  -  Sprycel  - 100 - 0.047%
2014/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0.0228%
2016/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Dec - Genoptix  -  IS  -  Sprycel  -  100 - 0%
 

 


#4 hannibellemo

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Posted 16 April 2011 - 07:37 AM

RJF,

Congratulations on your cancerversary! May you have many more!

My cancerversary, based on dx, is four days after my wedding anniversary and just a few short days shy of Christmas. I never thought about it before and I don't celebrate it at all. My first anniversary would have gone unnoticed except I saw the date when I was posting on this site and made some mention of it at that time. I don't think I said anything last year.

Now, however, I am going to change my cancerversary to the date I reached MMR. That is something to celebrate IMHO.

Thanks for the thought provoking post.

Pat


Pat

 

"You can't change the direction of the wind but you can adjust your sails."

DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>





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