Obviously Dilbert's Pointy Hair Boss Does Not Have CML!
Started by
hannibellemo
, Apr 11 2011 05:42 PM
7 replies to this topic
#1
hannibellemo
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Posted 11 April 2011 - 05:42 PM
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
#2
ChrisC
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Posted 11 April 2011 - 05:44 PM
Be alert, but not overly concerned.
• Dx Oct. 22, 2008, WBC 459k, in ICU for 2 days + in hospital 1 week
• Leukapheresis for 1 week, to reduce WBC (wasn't given Hydroxyurea)
• Oct. 28, 2008: CML confirmed, start Gleevec 400mg
• Oct. 31, 2008: sent home when WBC reached 121k
• On/off, reduced dose Gleevec for 7 months
• April 2009: Started Sprycel 100mg
• Sept. 2009: PCRU 0.000
• Sept. 2011: after 2 years steady PCRU & taking Sprycel 100mg before bed, quit Sprycel (with permission)
• Currently: still steady PCRU, testing every 6 months 🤗
— Fatigue, hearing loss continue, alas, but I prefer to think it is all getting better!
#4
Marnie
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Posted 11 April 2011 - 07:38 PM
Some imaginary friends are the absolute BEST!!
#5
jrsboo
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Posted 14 April 2011 - 01:03 PM
I prefer to think of us as Virtual Friends..............not really imaginary. Imaginary friends as adults gets you a one way ticket to the psych ward.
#6
helenet
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Posted 14 April 2011 - 02:59 PM
YES-- great and intimate friends-- ones who share info about their MONKEY BUTTS and Sharts!
#7
Guest_billronm_*
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Posted 15 April 2011 - 08:01 PM
Dear Helenet,
I have never had closer more intimate friends than I do now.
Thank You Everybody Billie
#8
hannibellemo
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Posted 18 April 2011 - 06:40 AM
Hi, Caroline,
Just a little background on the use of "imaginary friends" vs "virtual friends" on this board.
http://community.lls...art=15&tstart=0
http://community.lls...age/95660#95660
or...you can see all of the references in one fell swoop here: http://community.lls...ginary friends*
Pat
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
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