16 replies to this topic

[kwrn12]

I am interested in connecting with others in Colorado diagnosed with Chronic Myelogenous Leukemia.  This journey would be easier to travel with others to connect with and perhaps start an online group or conference calls.  Please let me know if you would like to participate in a group such as this. 

[John]

Hi kwrn12,

I live down in the Parker area and was dx back in Sept. 2008, on Gleevec since the start, and PCRU for the past 9 months now.  Getting on the phone and talking about what a pain in the butt CML is sounds great, but maybe getting the group together for a cocktail or two would be even more helpful...

John

[kwrn12]

Hi John,

  I like your thinking!  I live in Steamboat but my oncologist is in Denver, so I am in your neighborhood at least monthly.  Feel free to send me an email at kwrn12@aol.com. 

Thanks, Karla

[td1961]

Hey Karla, I'm down here in Basalt. Been under its evil spell since 9/2003. Count me in.

TracyD

[kwrn12]

Wow TracyD...you have trumped us all with your 2003 card!  Not only are you in...you can wear the crown!

[td1961]

It's a crown of thorns but I'll take it never the less! I'm on a month's drug holiday curing a pleural effusion from Sprycel but am available for coronation after that! Har! TracyD

[Archer591]

I would love to help/participate however I can.  I sent you an email with more detailed information.  I am down in Pueblo and Denver is certainly a short trip and I am there for business quite often.  I was diagnosed 4/30/10 and am on 400 mg of Gleevec......hopefully heading to PCRU!  

[Marnie]

There seem to be quite a few of us out here.  I'm in Lakewood.  There's another woman who sees the same onc as I do, and she's in Aurora.  I touched base briefly with a guy in Centennial, who shares an interest in motorcycling.  We could have quite a party if we could ever find a time to all get together!!

Marnie

PS.  Tom, I used to be a distance runner and have done a marathon and triathlon. . .but I ruined my knees so no more running for me. . .at least that's what the surgeon said after my 3rd knee surgery.

[kaufmanp]

Another CMLer in the Denver area (Centennial/Auroa, actually).  Just diagnosed three weeks ago, March 17, 2011, so I'm a newbie to the CML world.

[Marnie]

Hey, Paul. . .welcome to the club that no one wants to join, but that gives you a free, lifetime membership!!  And your bonus prize for joining is fatigue and the sharts.  Yippee!!

Membership does include this forum, and the humorous folks who inhabit it.  Lots of great info here, and good support as well.  Welcome to the club!

Marnie

[kwrn12]

Hi Paul!!  Perhaps you and I are the newest diagnosed in the group..I got my membership card in the fall and started Tasigna November 1^st.  (Am I the only one here taking Tasigna??)  I have not had any sharting with it, but somehow I suddenly feel left out!!   I bet I will get over that! 

Hi Billie!!  Pleasure to make your acquaintance. Where do you live??

I am beginning to sense we may be the Holy Grail group of Colorado CMLers .  A group that is forming, for support, through humor and happiness.  

Peace

[kaufmanp]

I was going to start Tasgnia as my first line but decided against it since I already take Prilosec for reflux.  PPIs like Prilosec have a drug interaction with Tasigna and Sprycel but are apparently okay on Gleevec.  I figured the fewer changes I could make initially, the better. 

I've only been on the Gleevec for a week and a half but so far (knock on wood!) I've only had some minimal sharting and no other side effects.  I hope it stays that way.  You know, I thought I was going to have another 40 years (I'm 34) before I started talking about my bowels to random people!  I guess I'll just have to get used to that.  Perhaps this gives me the excuse for .... potty ... humor? <rimshot>

On a super-fantastic-wonderful note, my white blood cell count has already halved from being on the Gleevec.  That's freakin' awesome!

[Marnie]

I just want to clarify. . .I DO NOT have the sharts (Sprycel, I love you. . .or at least I will if I find out in 2 weeks, that you are doing your job).

While on Gleevec, I did have my moments of panic (the time we walked too far on the beach in NC, and I ended up dashing with cheeks clenched for 2 miles along the shore comes to mind).  I must say, I kind of miss taking the "golden bullet,"  but alas, it wasn't working very well for me, so I've moved on to the boring white pill.

Marnie

[Archer591]

Hi all,

Does anyone want to get together in the Denver area the first part of June?  I live in Pueblo, but would love to connect in person with others who are sharing the CML journey.  I am thinking drinks are in order!

[Marnie]

Hi, Tom. . .

I'm in Denver, but would be happy to drive elsewhere (any excuse to get out on the bike).  We're heading up to Yakima, WA on June 4, though, so it would have to be REALLY early June for me.  Or end of June.

Marnie

[crob20]

Ohers in Colorado with CML

Greetings!

My name is Carol and I live in Littleton. 1st Gleevec 3/31/09. PCRU 2/10. Would love to meet others.

e-mail

Happy to meet you all!

Carol

Message was edited by: Sara68

[kaufmanp]

I'm game!