I am interested in connecting with others in Colorado diagnosed with Chronic Myelogenous Leukemia. This journey would be easier to travel with others to connect with and perhaps start an online group or conference calls. Please let me know if you would like to participate in a group such as this.
Others diagnosed with CML in Colorado
Posted 27 March 2011 - 05:21 PM
I live down in the Parker area and was dx back in Sept. 2008, on Gleevec since the start, and PCRU for the past 9 months now. Getting on the phone and talking about what a pain in the butt CML is sounds great, but maybe getting the group together for a cocktail or two would be even more helpful...
Posted 28 March 2011 - 10:22 AM
Hey Karla, I'm down here in Basalt. Been under its evil spell since 9/2003. Count me in.
Posted 28 March 2011 - 09:16 PM
Wow TracyD...you have trumped us all with your 2003 card! Not only are you in...you can wear the crown!
Posted 30 March 2011 - 08:09 AM
It's a crown of thorns but I'll take it never the less! I'm on a month's drug holiday curing a pleural effusion from Sprycel but am available for coronation after that! Har! TracyD
Posted 03 April 2011 - 11:13 AM
I would love to help/participate however I can. I sent you an email with more detailed information. I am down in Pueblo and Denver is certainly a short trip and I am there for business quite often. I was diagnosed 4/30/10 and am on 400 mg of Gleevec......hopefully heading to PCRU!
Posted 03 April 2011 - 03:54 PM
There seem to be quite a few of us out here. I'm in Lakewood. There's another woman who sees the same onc as I do, and she's in Aurora. I touched base briefly with a guy in Centennial, who shares an interest in motorcycling. We could have quite a party if we could ever find a time to all get together!!
PS. Tom, I used to be a distance runner and have done a marathon and triathlon. . .but I ruined my knees so no more running for me. . .at least that's what the surgeon said after my 3rd knee surgery.
Posted 03 April 2011 - 09:52 PM
Another CMLer in the Denver area (Centennial/Auroa, actually). Just diagnosed three weeks ago, March 17, 2011, so I'm a newbie to the CML world.
Posted 04 April 2011 - 07:14 PM
Hey, Paul. . .welcome to the club that no one wants to join, but that gives you a free, lifetime membership!! And your bonus prize for joining is fatigue and the sharts. Yippee!!
Membership does include this forum, and the humorous folks who inhabit it. Lots of great info here, and good support as well. Welcome to the club!
Posted 05 April 2011 - 10:26 PM
Hi Paul!! Perhaps you and I are the newest diagnosed in the group..I got my membership card in the fall and started Tasigna November 1st. (Am I the only one here taking Tasigna??) I have not had any sharting with it, but somehow I suddenly feel left out!! I bet I will get over that!
Hi Billie!! Pleasure to make your acquaintance. Where do you live??
I am beginning to sense we may be the Holy Grail group of Colorado CMLers . A group that is forming, for support, through humor and happiness.
Posted 06 April 2011 - 08:05 AM
I was going to start Tasgnia as my first line but decided against it since I already take Prilosec for reflux. PPIs like Prilosec have a drug interaction with Tasigna and Sprycel but are apparently okay on Gleevec. I figured the fewer changes I could make initially, the better.
I've only been on the Gleevec for a week and a half but so far (knock on wood!) I've only had some minimal sharting and no other side effects. I hope it stays that way. You know, I thought I was going to have another 40 years (I'm 34) before I started talking about my bowels to random people! I guess I'll just have to get used to that. Perhaps this gives me the excuse for .... potty ... humor? <rimshot>
On a super-fantastic-wonderful note, my white blood cell count has already halved from being on the Gleevec. That's freakin' awesome!
Posted 06 April 2011 - 06:29 PM
I just want to clarify. . .I DO NOT have the sharts (Sprycel, I love you. . .or at least I will if I find out in 2 weeks, that you are doing your job).
While on Gleevec, I did have my moments of panic (the time we walked too far on the beach in NC, and I ended up dashing with cheeks clenched for 2 miles along the shore comes to mind). I must say, I kind of miss taking the "golden bullet," but alas, it wasn't working very well for me, so I've moved on to the boring white pill.
Posted 14 May 2011 - 03:51 PM
Does anyone want to get together in the Denver area the first part of June? I live in Pueblo, but would love to connect in person with others who are sharing the CML journey. I am thinking drinks are in order!
Posted 14 May 2011 - 03:58 PM
Hi, Tom. . .
I'm in Denver, but would be happy to drive elsewhere (any excuse to get out on the bike). We're heading up to Yakima, WA on June 4, though, so it would have to be REALLY early June for me. Or end of June.
Posted 17 May 2011 - 10:37 PM
Ohers in Colorado with CML
My name is Carol and I live in Littleton. 1st Gleevec 3/31/09. PCRU 2/10. Would love to meet others.
Happy to meet you all!
Message was edited by: Sara68
Imatinib 400 mg started
3/16 still PCRU but side effects worse. Stopped Imatinib for a week. Tried Sprycel 2 days.
4/16 restarted Imatinib at 300 mg.
6/16 showed 1 transcript
9/16 PCRU returned
5/1/17 Imatinib 200 mg
8/17 showed "1 transcript"
10/17 PCRU returned
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