I was at my onc. office on Friday and I am still at "not detected" and 0.00%. Has been since the beginning of July with this new oncologist.My counts are WBC 6.7 RBC 3.64 HGB 11.9 Platelets 255 Glucose 95 Potassium 4.9 BUN 8 Calcium 8.8 AST 19 ALT 14
But I still can't rid of the shakes so I have spent the whole day trying to find a psychiatrist and finally got one but can't get in till the 31st of this month. Some had 5 month waiting periods. My onc. says to take my xanax (1mg) every 6 hrs not just when I think I need one that way it stays in my body. I don't like to but I can't function with the shakes or tremors I feel inside me. I would be ok (I think) if they would go away other than gaining some more weight that I didn't want. I was at 110 when I started seeing him in April and now I am at 142 and don't like that. My daughter in law wants me to go to Zumba classes with her, i ask her if they had a senior or slow section cause I don't think I could keep up with the way my legs ache and are weak. It's a hour long but I would be on first move and they would be done with the class.
Does this mean I can say I am in complete remission now? I forgot to ask that. I wish I would of filed a malpractice suit on that other "quack" but was so sick and weak to think of that just wanted to feel better. My new onc. has tried to call him numerous times to have a consult and he won't return the call. My new one wants to know why he did all that stuff to me, why didn't he say "I am not sure how to handle this CML so we will find you a different onc." He says he is not a professional if he can't return a call from another dr. when it comes to a cancer patient.
I guess that's it for me just wanted to let every one know where I was at now.
Thank you to everyone for advice and info thru my really rougher times, Dee