Hey Lori, I too didn't know if it was Acute or not for a few days at first. I had an Onc who was very old and not too familiar with this. It took him and his team about 3 days with me in the hospital to figure out what it was. Boy, I went through some heavy stuff ! I was mentally preparing to go already. When the doctors would come in and take more blood every few hours I would ask them what they thought and they would say its not looking good, we can only hope you'll be fine. My Oncologist even told me "don't worry, you could still live a long time, about 5-8 more years". YES!, he literally told me that (i'm 30 by the way). This was even after he figured out I had CML as opposed to something Acute. None of these doctors knew anything about CML and the latest therapies.
Think what I had to tell my mother, that fateful Friday, when I came out of work to see the Oncologist for my appointment, which by the way, I had to get a referral from my PCP to see him, who originally detected my WBC at 160k (My PCP looked so worried and told me that he believes I have cancer. He also said he would fax the referral but it took him about 8 days to get that done). So I meet this Oncologist and he tells me that he needs me to stay overnight for a few days because it could be Acute and I could die within a few days to weeks (think about that shock to the system). I stay all weekend and I call my mother to let her know they've admitted me. Of course, she's all worried so I just make up something general and tell her that they think I have some "blood disorder" and that my WBC goes up real high. I didn't want to use the word "cancer". Actually, I refuse to think of it that way even now. Either way, she gets so worried and starts making me soups and bringing fruits, etc.. I then had to do heavy research on my own and finally found a "true" specialist online. I managed to find a different CML forum and post my story there. You can tell the initial shock I was in with my very long post of questions. Read it and you'll see how much stuff was going through my head at that time. I'm very glad for these forums since the people on it can definitely give you piece of mind knowing that you can do well and live long with this.
It took about 3 1/2 weeks for me to see a "true" specialist in CML and for me to hear the words from his mouth saying "don't worry, you'll be fine". I really thought I was gonna go. I was reading CML on Wikipedia, (that reeeaaaally needs to be updated) and that only made it worse ! I found this great forum after that and things have looked much better since then.
Those 3 1/2 weeks I was walking around like a zombie who thought his time was up. I would hide from everybody and not talk much. I'd only wished I found a better doctor beforehand but it seems everyone I encountered did not know much about this, then reading stuff from the internet made it worse.
Welcome, and as a reminder, you'll be fine.