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~~~~HAPPY DANCE~~~~

Started by VickiW , Feb 24 2011 06:42 PM

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#1 VickiW

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Posted 24 February 2011 - 06:42 PM

Hi Everyone!!!

Just got the call from my clinic and the nurse said my Onc told her to tell me to go out and celebrate, BECAUSE, after 2 rough years on Gleevec and coming up on my second anniversary on Sprycel---- I've made it to PCRU, the big ~~~O~~~!

My wonderful Onc and I had just talked on Tuesday about, among other things, how I am probably one of those that will never quite "get there" but I said it was fine with me as long as I stayed in the neighborhood (which made my Onc smile).  We even talked about how great it is that Bosotinib is so close to approval (because I'll probably need it).

I really hope this will be an encouragement to anyone on this board who feels like they are never going to get there.  Truly, if I could get there, against the odds, after all this time, it just proves that anyone can

Now I must go finish my HAPPY DANCE before my hubby gets home (trust me, this is not something anyone else should be subjected to~~hehehe)

Blessed weekend everyone!

Vicki


Dxd 2007

started on Gleevec switched to Sprycel 100mg in 2009

PCRU since 2011

20mg Sprycel every other day since Dec. 2014

Began TFR 4-18-16

#2 hannibellemo

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Posted 24 February 2011 - 06:52 PM

Congratulations, Vicki, I'm virtual dancing right along with you!

Pat


Pat

 

"You can't change the direction of the wind but you can adjust your sails."

DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>

#3 Trey

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Posted 24 February 2011 - 07:25 PM

That is truly encouraging.

http://www.youtube.c...h?v=jRwsTyUPIYE


#4 jwbwater

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Posted 24 February 2011 - 07:34 PM

Congratulations, it's great to hear that your persistence paid off


#5 JeffJ

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Posted 24 February 2011 - 07:52 PM

Vicki, its always nice to hear great news, I'm happy for you.  Jeff


#6 ChrisC

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Posted 24 February 2011 - 10:10 PM

Vicki,

Congratulations! Dance on!

ChrisC


Be alert, but not overly concerned.

 

• Dx Oct. 22, 2008, WBC 459k, in ICU for 2 days + in hospital 1 week

• Leukapheresis for 1 week, to reduce WBC (wasn't given Hydroxyurea)

• Oct. 28, 2008: CML confirmed, start Gleevec 400mg

• Oct. 31, 2008: sent home when WBC reached 121k

• On/off, reduced dose Gleevec for 7 months

• April 2009: Started Sprycel 100mg

• Sept. 2009: PCRU 0.000

• Sept. 2011: after 2 years steady PCRU & taking Sprycel 100mg before bed, quit Sprycel (with permission)

• Currently: still steady PCRU, testing every 6 months 🤗

— Fatigue, hearing loss continue, alas, but I prefer to think it is all getting better!

 

 

#7 Guest_billronm_*

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Posted 25 February 2011 - 12:44 AM

Dear Vicki,

Congratulations, hearing your good news makes us all feel better. Now we know we,ll all catch up with you! I,d dance with you but I,m to tired.It's almost 1:am here. I,ll do the irish jig in the morning when the caffiene kicks in.  I am so happy for you, Billie


#8 PhilB

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Posted 25 February 2011 - 02:15 AM

Congratulations Vicki!  Like Billie I'll have to get some caffeine in me before I join you in a virtual boogie.

It really is starting to look as though the new drugs are getting far more people to PCRU than Glivec which is great news.

Phil


#9 bsbk13

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Posted 25 February 2011 - 07:58 AM

Wonderful news!!!!


#10 HeatherZ

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Posted 25 February 2011 - 08:39 AM

Awesome news!  Glad to hear there is some light at the end of this tunnel.


#11 Marnie

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Posted 25 February 2011 - 08:56 AM

Congrats!!  I'm there, dancing with you!!

marnie


#12 janekaye

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Posted 25 February 2011 - 11:09 AM

Yay!  How exciting.  I'm so glad for you!

-janekaye


#13 VickiW

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Posted 25 February 2011 - 08:25 PM

THANK YOU EVERYONE!

I pray that everyone will be joining me very soon!

Billie-- how did you know I was Irish?  (Bet the "dance" gave it away)


Dxd 2007

started on Gleevec switched to Sprycel 100mg in 2009

PCRU since 2011

20mg Sprycel every other day since Dec. 2014

Began TFR 4-18-16

#14 VickiW

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Posted 25 February 2011 - 08:29 PM

Trey- loved the snoopy and the bunnies dance!  looked a lot better than what I could do!


Dxd 2007

started on Gleevec switched to Sprycel 100mg in 2009

PCRU since 2011

20mg Sprycel every other day since Dec. 2014

Began TFR 4-18-16

#15 cousineg

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Posted 26 February 2011 - 10:26 AM

st_pat_personnages012[1].gifCongratulations Vicky!


#16 Guest_billronm_*

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Posted 26 February 2011 - 02:00 PM

Dear Vicki,

Wee Irish Lassies love to dance.

                LOL  Billie


#17 Tedsey

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Posted 07 March 2011 - 01:51 PM

Sorry, this is so late.  I have taken too big of a break from the board!  Catchin' up.  Yippeee!  Congrats!  Long life to you!

Teds


#18 Guest_billronm_*

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Posted 07 March 2011 - 05:31 PM

Dear Phil,

I would pay money to see you dance with Trey's penguin

                          Caffeine Allowed Billie


#19 VickiW

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Posted 07 March 2011 - 05:43 PM

THANK YOU TEDSEY!!!

As for Phil and the dancing penguin???  Billie, you reallllllllly need to switch to decaf  (hehehe)


Dxd 2007

started on Gleevec switched to Sprycel 100mg in 2009

PCRU since 2011

20mg Sprycel every other day since Dec. 2014

Began TFR 4-18-16

#20 SunNsand

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Posted 08 March 2011 - 12:27 PM

Congrats!

I'm Irish also, maybe that's why I love to dance!

SunNsand


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