Thanks to all who shared my pain while waiting for my appointment today. Blood work was all great, very stable, no palpable spleen and Dr. L just called with my PCR results. I can't remember if he said .08 or .05, since they are basically the same it doesn't really matter (international scale, BTW). I'll get the specifics when he sends my reports. PCRU is not my goal; but if it should ever happen it will be icing on the cake!
He doesn't need to see me again for a year, at which time I will have a BMB/A. He wants my local onc to see me every 3 months for labs and do another PCR in six months. Thanks for the heads up, Trey - I feel so free!
I happened to mention that one of my colleagues was just diagnosed with CML and that I was surprised at the proximity since this is relatively rare and Mason City is small. Dr. L said he has several CML patients from Mason City. I wonder how this would look on a map? If approximately 5,000 new people are dxed every year, that means 100 per state without allowing for population density and any other variable that might be applicable. Any of you maths types have a clue what that would look like? Perhaps this has already been done?
Also, had my ENT final post sinus surgery appt and everything looks great. I swear I could almost see my brain - must be through one of those holes in my head that Steve keeps talking about. Did find out I probably have supraorbital neuralgia on the left side - I have a theory that the peri-orbital edema that I experience (much more on the left side than on the right) puts pressure on the nerve causing the pain. Steve questions whether edema can exert that much pressure. Anyone else have this?
I also attended a class on Stress Management while waiting for my appt. I payed particular attention to the information about not worrying about those things over which I have no control!
I'm having a celebratory glass of my favorite Sav. Blanc. (it's a class exercise). Speaking of which, did 15 minutes on the Wii Fit Plus today. Thanks, all of you who suggested I upgrade.
Wishing everyone an early spring!
Pat