Well... This adventure continues. After 3 weeks of no Sprycel - my white blood system shows little or no recovery from myelosuppression.
Trey may find the numbers interesting - I am officially an "outlier" (as far as population statistics):
WBC: 1.3 (last week 1.0)
ANC: 0.17(last week 0.14)
RBC: 3.52 (last week 3.59) (within margin of error?)
HGB: 11.8 (last week 11.9)
HCT: 35.0 (last week 35.4)
Platelets: 156 (last week 132)
There is 'speculation' that since my Platelets are not 'spiking' up - that the Leukemic system is 'arrested' whatever that means and my normal system is slowly (very slowly) recovering to fill the void. The doctors expected my system to recover faster than this. I am apparently VERY sensitive to Sprycel and it nails the CML hard in my case. They still want to put me back on medication after my counts recover to near normal but at a very reduced dose. I am now an 'experiment'. Still - no stim shots - and they confirmed that they have concern about stimulating the cancer rather than stimulating my normal system.
As long as I don't get an infection - it is watch and wait.
I told them - "I am in spontaneous remission - helped by Sprycel" - and the answer was, "could be" (imagine that) - but you will still go back on therapy when the low counts recover. If I am still low next week - I will have a bone marrow biopsy so they can look inside and see what's going on including PCR/FISH and whatever else they want to do. This may all be good news. Still no concern about blasts. I don't have any. I don't have any blood.
What a strange trip this has been.
Trey - if you have any literature research on long term low counts without TKI's I'd love to read about it. The docs are finding my case - interesting. I am curious what other patients have experienced my path (i.e. sustained low counts post TKI cessation for long periods).