I just got back from a little walk. I am hoping to take them every day the weather permits now that I have some strength back after the PE. and going off of topomax. No headaches in the 3 days since stopping so hoping for good things there.
the doc monitored my first dose of Gleevec in the office/cancer center today and it was good. All the EKG's were fine, I got nauseaus and pale but that was pretty much it. slight numbing in lips. so they let me go after the labs for everything else were drawn and a workup to see where the clots came from.
dosing starts at 100mg 1x per day for 3 days ; 100mg 2x per day for 4 days. after that doc will decide if she takes it right to 400mg per day or if we stay at 200mg per day for a while longer.
so now i am queasy, and headachy which was my daily norm for 6 mths before dx anyway. trying not to think about side effects. i figure if they are bad i wont be able to not notice them and then i will deal with whatever comes up.
trying to use the zofran only when i get desperate or cant eat from the nausea. thanks for being here