I've joined this very good group in the hope I can find advice and support for my mum and the family. My mum was diagnosed with Myelodysplastic Syndrome last July, within 6 months it had developed into CML and she has just finished the first of a series of 10 day Chemo course. Mum is a very young 72. Before the diagnosis the specialist was convinced it was AML as she has quite a lot of Leukemic cells in her skin, and apparently this type of skin leukemia is associated with AML. When the result of the bone marrow test came back and confirmed CML the specialist said Mums case was very rare and not often seen. Mum is handling the news extremely well but she can not handle the skin irritation, her head, neck back and now part of her face is becoming darker, scaly and constantly itching, driving her nuts and bringing her down. The specialist does not seem to know what to give her to stop this persistent itching. Someone somewhere must also share this diagnosis, I just can't believe mum is the only one... Is there anyone out there who can help her find relief, any suggestion would be gratefully received. She is also losing weight, she is now only 7 stone, does anyone have any suggestions on how to put on weight. she is eating now, small meals and often and has a vitamin supplement she adds to her food, but she is still losing the weight.
Thank you in advance.