I have noticed my friends aren't asking me to do things with them like they used to. And this really hurts!!! Any one else experience this? They seem to be dwindling down, maybe a quick phone call once a week or they send me a card thru facebook. I don't drink since starting Gleevec but I can still go out and drink soda, hell I could be the driver but they don't even ask me. All my family except my kids are in another state so I can't call my mom when I am feeling really depressed and down. And now is when I need some one. My husband just had surgery on Wed. for blockages in both legs, thankfully he only needed 1 stint in left leg and my 15 yr old was just diagnosed with Celiacs Disease. So now I have to make a big life style change for him and he's a typical teenager wanting pizza and cheeseburgers but can't have the bun or the pizza dough. I know we will find a way but all the gluten free products are very expensive and we are living on just my husbands income. My legs won't let me work and I still have these tremors to deal with. This cold weather is killing my legs, they ache all the time. I never liked winter any way but I really don't now. There are no support groups here for CML, it's a combined group. I want to be able to talk to other people that have the same issues as me not say colon cancer, their issues are different than mine.
I go to see my oncologist in a little while, just a normal visit not a PCR result test this time.
I was told way back that I would find out who my true friends are when I got diagnosed. Boy, were they right? I am not contagious and can do some things, maybe a little slower sometimes. If they invite me to go out I could just rest awhile before going out but they don't even ask. I started doing some scrap booking but even that's expensive to do. I need every penny for my son now. He had no symptoms at all, endoscopy was being done to see how bad his acid reflux was and found it by accident that way. They say a mild case but needs to go all the way with the diet, maybe 6 months down the road he can try something he had to give up and see how it goes. From what I understand after his body is glutin free if he eats something with glutin in it he may get sick, if not then he may be allowed to put that back into his diet. We go see a dietrician this Tuesday. If any one has any suggestions on that I would appreciate them.
Thanks for letting me vent, Dee
P.S. I must of done something really bad at some time in my life for God to be punishing me with all this. I just don't get it at times, why all these things happening in my family? You know the old saying "calgon take me away" well I asked and she never showed the hell up!!! Neither did the cleaning fairy!!!!