5 replies to this topic

[survivor77]

Has any one else tried this?  

[survivor77]

When I have felt really sick, I smoke it and feel so much better.  Also eating it is great.  But I'm in recovery.  Not drinking alcohol; no way.  But I too have been frustrated by side effects, especially nausea.  I feel like I'm hung-over.  Pot takes it all away. mostly.

[hannibellemo]

Thought you might want to read a previous thread on this, http://community.lls...age/48758#48758.

Pat

[porciniak]

Thanks for providing the link and perhaps that will prevent this thread repeating that, very old and not on point, discussion of the merits, or not, of legalization of the drug, eh?

Anyway, I found that the drug stimulated my appetite and decreased nauseau very nicely, contrary to the prescribed marinol which just made me sleepy.  Stricken with pseudo-gvhd that lasted over 3 months and I was down to 90 # from a 'normal' weight of ~ 130.  I'm 5'2" and not a 90 pounder in my prime   Of course I was prescribed all the standard anti-nauseau meds which may have helped some but didn't do a thing for appetite.

Of course, as we all know drugs affect each of us differently.

[Trey]

What were the signs of the "pseudo-GVHD", and was that a diagnosis by a doctor?

[porciniak]

Signs of pseudo-gvhd?

Vomiting that drugs couldn't touch and yes the doc's at the Hutch used that term after a several visits to the GI docs' and a couple of biopsies.  Lucky me, eh?  Evidently it happens with auto transplants rarely.  There's a resurected thread, under I believe AML,  Mind you I'm a voracious reader, or was back in the pre transplant day, dx'ed in '98, knew transplant was on the table from ~ the begining but seriously discussed starting in 2004 and I'd not run across the term before.