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It didn't take too long and Girl stuff update


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#1 mck_001

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Posted 11 January 2011 - 01:19 PM

Not to say that I'm not having ups and downs and life is perfectly hunky dory, but I just wanted to pop in here and say I feel that I'm out of my new diagnosis funk and am not crazy anxious about the future anymore.  I'm just about 6 months into this and am not as consumed with CML as I was for what felt like a lifetime.  I just want to encourage those of you who are newly diagnosed...that someone who is a natural worrier and never thought she'd get to the place where she wasn't consumed with CML has gotten there (or at least much closer to it).  I think drawing nearer to God has definitely been what's gotten me here.

Also, ladies....my menstrual cycle issues were all because of a big ole' mass on my ovary.  I had it and my ovary removed an it was benign.  Our theory is that when my platelets and blood counts were scary high at the onset of my diesease, it created this tiny little blood filled cyst which ended up not going away on its own as so many do and growing and growing to be a bothersome size.  It's too early to confirm because I haven't started back up with my periods since my surgery, but it makes a lot of sense.  If you're having heavier and/or more frequent periods...get a sonogram of your uterus and ovaries and check it out. Tumors on ovaries can cause hormonal imbalances, as well...and getting rid of that ovary/tumor probably contributes to my better attitude. 



#2 helenet

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Posted 11 January 2011 - 01:36 PM

I am glad you are feeling more positive. But I am sorry you had to have surgery. I wonder how many women present with very high platelet counts.  I was one of them--my platelets were at 2 million-- and my periods were extremely heavy. I became anemic.  My original ONC states that the heavy period allowed early diagnosis.  I understand it is not unusual to be diagnosed way into late stages of CML-- however in my case my heavy periods took me to the doctor.



#3 CallMeLucky

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Posted 11 January 2011 - 04:34 PM

Glad you are feeling better MK, I can relate to what you are saying, I'm a few months ahead of you and also noticed that lately it's not on my mind as much.  Seems to intensify around testing time, then dies down for the most part.  At some point I guess you just start to get bored thinking about it.

Here's to hoping it becomes an uneventful affliction for all of us.


Date  -  Lab  -  Scale  -  Drug  -  Dosage MG  - PCR
2010/Jul -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 1.2%
2010/Oct -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.25%
2010/Dec -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.367%
2011/Mar -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.0081%
2011/Jun -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2011/Sep -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.00084%
2011/Dec -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Mar -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.004%
2012/Jun -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Sep -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Dec -  MSKCC  -  Non-IS  -  Sprycel  - 100 - 0%
2013/Jan -  Quest  -  IS  -  Sprycel  -  50-60-70  - 0%
2013/Mar -  Quest  -  IS  -  Sprycel  -  60-70  - 0%
2013/Apr -  CUMC  -  Non-IS  -  Sprycel  - 50 - 0.036%
2013/May -  CUMC  -  Non-IS  -  Sprycel  - 50 - 0.046%
2013/Jun -  Genoptix  -  IS  -  Sprycel  - 50 - 0.0239%
2013/Jul -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0192%
2013/Jul -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0034%
2013/Oct -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0054%
2014/Jan -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0093%
2014/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0.013%
2014/Apr -  Genoptix  -  IS  -  Sprycel  - 100 - 0.0048%
2014/Jul -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2014/Nov -  Genoptix  -  IS  -  Sprycel  - 100 - 0.047%
2014/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0.0228%
2016/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Dec - Genoptix  -  IS  -  Sprycel  -  100 - 0%
 

 


#4 janner25

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Posted 11 January 2011 - 08:04 PM

Hi MK - thanks for the positive words...I would think I'm in the newly diagnosed group and the past few weeks have been rough.  I'm looking forward to when I'm feeling better - both physically and emotionally!  I hope 6 months (or sooner as I'm 2 1/2 months into it now...).  Summer would be the perfect time to start feeling better all around .






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