13 replies to this topic

[scuba]

Moving from the old forum to the new community format is not ideal, but I did notice that our old forum has only 68 people. That was a surprise.

 

The new "community" forum already has almost 600 members and so is probably a better place to reach more people and for them to find and reach you. 

 

I don't know how large the U.K. group is - I could not find the membership size.

(I did post a welcome note - feel free to add to it so we know you have "arrived":

https://www.cmlsuppo...s-cml-group-us)

 

Hopefully we will all find each other again in a format that facilitates communication, learning and helping. Over time one the new sites will become a prime destination.

 

All the best to you on your continuing journey with CML.

[M.A.]

Thanks scuba

 

I just signed up for the UK site too. Have joined your welcome thread.

 

I've joined the new LLS community too as I don't want to lose touch with you all but I'm concerned the cumbersome nature of it will mean I won't get there often when I'm time poor. Fingers crossed the new LLS forum can be improved quickly.

[kat73]

Scuba and Everyone - I have registered with the LLS Community, seen and tried the site, and have bolted to the UK one.  I guess I'll try and stay in touch with both for awhile.  I really can't understand the LLS one AT ALL.  I feel like I have a huge thick glass plate between me and everyone and no one can hear me or see me.  I am utterly confused by how the replies dribble down by various duplicative routes until you have no idea which rabbit hole you're in.  So much backtracking necessary!  I have no sense of the here, the now, the place.  Where am I, some horrible limbo?  I will try to go by kat73 wherever I go.  Please, someone, come find me!

[kat73]

Sorry - I just had to add another post here as an addendum to my one above.  I just perused thoroughly the UK site.  It is terrific!  It's so easy to understand, so well-organized and intuitive, and you have the sense that they keep everything handy (like articles, videos, resources) and it doesn't just flit by and scroll off into the ether.  They have some expert (but still patients) expertise very present.  And, although it doesn't work exactly like this one, it's close enough that I, for one, could see myself there.  I can find stuff, I can find people.  A conversation on point can ensue on a topic, and you can see the comments/replies that are there - yours, someone else's.  Why am I not surprised that the Brit site would show good common sense?  Call the Midwives!  I'm going to head back over the pond!

[scuba]

Someone tell Trey to head over to the U.K. site and register and perhaps link to his terrific beginners blog and we can continue where we left off from here.

[hannibellemo]

Interesting, scuba, about the number of posters on here. Makes mores sense now. People are living and going on about their business. There's just a few who hang on to welcome the newcomers.

[Trey]

I will be on LLS Community since that is where newly diagnosed patients will go for help.

[campanula]

Can you do both sites, Trey?  Please?

[Trey]

I will be on LLS Community since that is where newly diagnosed patients will go for help.

[gerry]

Sandy does a great job running the UK site. :-)

[M.A.]

But there is only one Trey!

[M.A.]

Meaning... no one can fill his shoes...

[gerry]

Trey is needed here on the LLS forum to help the newbies as he helped all of us. If people need to move to another Forum due to the changes that LLS make, that is their choice. Sandy Craine has been helping the CMLers in the UK the same way Trey had helped people here. :-)

[cmljax]

Ditto - for those of you that will use the UK site, Sandy Craine is a tremendous resource.  She went out of her way to help me with a couple issues I had early in my treatment and helped to reinforce what I learned form Trey and Scuba here.