Yeah, I did that for the first 2½ years, didn't like the side effects of 400mg vitamin G, but it got me to a good place, response wise.
I actually increased back up to 400mg/day until I can get me some vitamin S.
Yeah Kirk, I'm sorry for the side effects, but I'll say this (controversially) :
-taking vitamin D specifically, and/or multi vitamin exacerbated if not directly caused pounding headache and nausea with each tki I've taken.
-the common opinion/preaching on this board is hit mmr by month 6, cut dose nearly immediately, then go tfr the following month (exaggerated) . I think this may work long term for a few, but it's not necessarily wise to do in my opinion. Most doctors and early research directly oppose tfr, and reducing dosage. I think they have caved mostly due to the fact that they know a patient will ultimately do what they want anyway, so they might as well keep trust and observe long term. But I don't understand the research that was printed opposing these things. I recall a statement that patients failing to take their drugs at 90% of time, fail to hit mmr, so there has to be some threat of resistance I believe.
-the drugs can certainly make us feel bad, but cycling through drugs with the opinion that the compound failed when in fact it could've been dosage or diet or whatever, I think is far worse, because that wick won't burn forever.
3/25/2015- Dx'ed by FISH : 85% of cells dual-fusion signals, 7% with tri-fusion signals, WBC 212,000. Started Gleevec 400mg.... Calculated .93 SOKAL
08/17/2015- 14.793 % I.S P210 (quest)
10/15/2015- 3.313 % I.S (quest)
12/23/2015- 1.891 % I.S (quest)
1/07/2016- Tasigna 300mg 2x daily
1/14/2016- 4.414 % I.S P210- City Of Hope lab, mutation negative.
1/26/2016- 1.589 % I.S (quest)
2/22/2016- 1.719 % I.S (quest)
2/29/2016- 1.133 % I.S (quest)
3/03/2016- Tasigna 400mg 2x daily.
3/29/2016- 0.663 % I.S (quest)
4/27/2016- 0.781 % I.S (quest)
5/04/2016- 0.652 % I.S.(quest)
5/24/2016- 0.501 % I.S (quest)
6/28/2016-0.534 % I.S (quest)
7/15/2016-0.881 % I.S (quest)
7/22/2016- Bosulif 500mg
7/28/2016- t315i test- Negative
8/22/2016-0.432 % I.S (quest )
11/15/2016-0.325 % I.S (quest)
2/1/2017- .0445% i.s (genoptix)
5/6/2017- .0968% i.s (genoptix)
5/12/2017- .12 % i.s (quest).
6/4/2017- .083% i.s (quest)
6/11/2017- .0295% i.s (genoptix)
8/5/2017- .0501% i.s (genoptix)
11/6/2017- .0270% i.s (genoptix)