Just found this page while searching for other CML discussion groups. It was posted to a Google group titled "CMLHope" I hope he's still with us on the green side.
http://easyskipcacom....com/index.html
40 years fighting CML and still on the "Green Side"
Started by
Red Cross Kirk
, Jan 22 2018 09:12 PM
2 replies to this topic
#1
Red Cross Kirk
-
- Members
-
- 173 posts
Advanced Member
- LocationOregon
Posted 22 January 2018 - 09:12 PM
Kirk
9/25/2012 p210 transcript 118.7% IS @ Dx, begin Gleevec 400mg/day
12/2012 3.59% & bone marrow biopsy - no residual myeloproliferative features but detected 1/20 metaphases containing the Philadelphia chromosome
2013 0.914%, 0.434%, 0.412%
10/2013 0.360% & bone marrow biopsy - normal male karyotype with no evidence of a clonal cytogenetic abnormaltiy
2014 0.174%, 0.088%, 0.064%
2015 0.049%, decrease to Gleevec 200mg/day, 0.035%, 0.061%, 0.028%
2016 0.041%, 0.039%, 0.025%
2017 0.029%, 0.039%, switched to generic imatinib 200mg/day, 0.070%, 0.088%
2018 0.233%
#2
Sandrea
-
- Members
-
- 33 posts
Advanced Member
- LocationRussia, Siberia, Novosibirsk
Posted 22 January 2018 - 09:58 PM
Yes, he's still with us on the green side, I see his posts in the facebook CML group, for example, his last message here is and this is his facebook account
Diagnosed 1 April 2015. WBC 86000; b2a2 (p210) transcript
on Hydrea for 2 months, then generic Gleevec 400mg (06/06/15)
CCyR in April 2016
12/22/2016 PCR: 0.49% (IS) 18 Month
03/29/2017 PCR: 0.68% (not IS) 21 Month
06/06/2017 PCR: 1.62% (not IS) 24 Month
06/20/2017 increased dose of imatinib to 600mg
10/30/2017 PCR: 0.15% (not IS) 28 Month
#3
Red Cross Kirk
-
- Members
-
- 173 posts
Advanced Member
- LocationOregon
Posted 22 January 2018 - 10:34 PM
Thanks for the update!
Yes, he's still with us on the green side, I see his posts in the facebook CML group, for example, his last message here is and this is his facebook account
Kirk
9/25/2012 p210 transcript 118.7% IS @ Dx, begin Gleevec 400mg/day
12/2012 3.59% & bone marrow biopsy - no residual myeloproliferative features but detected 1/20 metaphases containing the Philadelphia chromosome
2013 0.914%, 0.434%, 0.412%
10/2013 0.360% & bone marrow biopsy - normal male karyotype with no evidence of a clonal cytogenetic abnormaltiy
2014 0.174%, 0.088%, 0.064%
2015 0.049%, decrease to Gleevec 200mg/day, 0.035%, 0.061%, 0.028%
2016 0.041%, 0.039%, 0.025%
2017 0.029%, 0.039%, switched to generic imatinib 200mg/day, 0.070%, 0.088%
2018 0.233%
1 user(s) are reading this topic
0 members, 1 guests, 0 anonymous users
