Anyone know of any patient-run CML discussion boards with decent traffic flow?
Patient-run CML discussion boards? Any out there?
Started by
tiredblood
, Nov 19 2017 09:56 PM
4 replies to this topic
#2
ROMO
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Posted 20 November 2017 - 12:13 AM
https://www.cmlsupport.org.uk/
This one is in the UK.
These folks are familiar with European studies.
They speak English.
Romo
DX August 2016. WBC ~160K
PH+ Cells 36%
No Spleen enlargement
No Symptoms. Other counts ~Normal
BCR-ABL p210 (Detected)
BCR-ABL p190 (Not Detected)
Sprycel 100mg.
PCR 02/01/2017 0.146 IS
PCR 08/07/2017 0.022 IS
Next PCR: 12/XX/2017
#3
tiredblood
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Posted 20 November 2017 - 03:12 PM
That would be good research across the globe. Thanks, Romo
#4
Lynne D
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Posted 20 November 2017 - 06:50 PM
There are many of them on Facebook.
Lynne Dagata
ldagata65@gmail.com
"Scar tissue is stronger than regular tissue. Realize the strength, move on" ~~ Henry Rollins
#5
Gregda
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Posted 20 November 2017 - 10:56 PM
Lynne - I just now see this reply at bottom of the pg. Please read email I just sent.
Do NOT post on FB... - Greg D.
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