I don't post very often, but wanted to share this. My teenage daughter created this comic book and gave it to me this morning for 9-22. I thought it was pretty awesome!
John
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Gleevec Man.pdf 1.7MB
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Happy CML Day 9-22
Started by
John
, Sep 22 2017 01:10 PM
13 replies to this topic
#1
John
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Posted 22 September 2017 - 01:10 PM
#2
Liamsdad
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Posted 22 September 2017 - 01:19 PM
Thanks for sharing and thank your daughter for giving me a good laugh!
Diagnosed 10/02/2015
Started Gleevec 400 mg 10/29/2015
10/29/2015 - 105% IS
01/28/2016 - 5.6% IS
02/02/2016 - 1.31% IS
04/21/2016 - 0.33% IS
07/29/2016 - 0.36% IS
10/10/2016 - 0.26% IS
01/11/2017 - 0.16% IS
04/03/2017 - 0.037% IS
06/20/2017 - 0.020% IS
07/24/2017 - 0.34% IS - switching to Tasigna
10/26/2017 - 0.47% IS - off Tasigna and now being switched to Sprycel
#3
SandyG353
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Posted 22 September 2017 - 01:19 PM
Happy CML Day to you and others.
Sandy
#4
hannibellemo
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Posted 22 September 2017 - 01:54 PM
John,
What a wonderful, talented daughter you have; she obviously loves you very much! Happy World CML Day to everyone on this site.
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
#5
kat73
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Posted 22 September 2017 - 03:54 PM
John - That's terrific! Great talent. Lots of verve, energy and movement in the lines, great composition, clean and confident drawing, humor, style - wow! My son, who's now a bona fide rock musician as a grownup, used to draw all day, every day. Could I have permission to send Gleevec Man to show him? He would love it even though I hated Gleevec and am a Sprycel girl. Hey, could your daughter draw Sprycel Girl?
Dx July 2009 on routine physical. WBC 94. Started Gleevec 400 mg Sept 2009. MMR at 2yrs. Side effects (malaise, depression/anxiety, fatigue, nausea, periorbital edema) never improved. Kidney issues developed because of Gleevec. Switched to Sprycel 70 mg in Aug 2011. Above side effects disappeared or improved. Have been MR3.5 - 4.5 ever since. Two untreated pleural effusions followed by one treated by stopping Sprycel Jan 2017. After 9 weeks, PCR showed loss of MMR; re-started Sprycel at 50 mg and in 3 months was back to <0.01% IS. Pleural effusion returned within a couple of months, same as before (moderate, left side only). Stopped Sprycel 50 mg for 12 weeks; pleural effusion resolved. At about a monthoff the drug, PCR was 0.03; at 11 weeks it was 2.06 - lost CCyR? Have returned to 50 mg Sprycel for 3 weeks, intending to reduce to 20 mg going forward.
#6
tiredblood
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Posted 22 September 2017 - 06:36 PM
Loved it. You should feel so loved.
#7
rcase13
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Posted 22 September 2017 - 07:04 PM
Awesome I love it! Tasigna Man!!!
10/01/2014 100% Diagnosis (WBC 278k, Blasts 6%, Spleen extended 20cm)
01/02/2015 0.06% Tasigna 600mg
04/08/2015 0.01% Tasigna 600mg
07/01/2015 0.01% Tasigna 600mg
10/05/2015 0.02% Tasigna 600mg
01/04/2016 0.01% Tasigna 600mg
04/04/2016 PCRU Tasigna 600mg
07/18/2016 PCRU Tasigna 600mg
10/12/2016 PCRU Tasigna 600mg
01/09/2017 PCRU Tasigna 600mg
04/12/2017 PCRU Tasigna 600mg
10/16/2017 PCRU Tasigna 600mg
01/15/2018 PCRU Tasigna 600mg
Cancer Sucks!
#8
ROMO
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Posted 23 September 2017 - 04:50 PM
When I was growing up we were told to stay away from drugs.
Nothing good would come of it.
My, have things changed.
I prefer Sprycel Woman!
Just born that way...
Great job.
Romo
DX August 2016. WBC ~160K
PH+ Cells 36%
No Spleen enlargement
No Symptoms. Other counts ~Normal
BCR-ABL p210 (Detected)
BCR-ABL p190 (Not Detected)
Sprycel 100mg.
PCR 02/01/2017 0.146 IS
PCR 08/07/2017 0.022 IS
Next PCR: 12/XX/2017
#9
Pin
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Posted 23 September 2017 - 06:17 PM
That is fantastic! Well done!!!
Diagnosed 9 June 2011, Glivec 400mg June 2011-July 2017, Tasigna 600mg July 2017-present (switched due to intolerable side effects, and desire for future cessation attempt).
Commenced monthly testing when MR4.0 lost during 2012.
2017: <0.01, <0.01, 0.005 (200mg Glivec, Adelaide) <0.01, 0.001 (new test sensitivity)
2016: <0.01, <0.01, PCRU, 0.002 (Adelaide)
2015: <0.01, <0.01, <0.01, 0.013
2014: PCRU, <0.01, <0.01, <0.01, <0.01
2013: 0.01, 0.014, 0.016, 0.026, 0.041, <0.01, <0.01
2012: <0.01, <0.01, 0.013, 0.032, 0.021
2011: 38.00, 12.00, 0.14
#10
jch
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Posted 24 September 2017 - 06:58 PM
Made me smile, thanks
6/13/2016 100% IS
7/17/16 Started 100mg Sprycel
8/26/2016 4.839% IS
3/9/2017 0.021% IS
7/7/2017 Not Detected
7/27/2017 Sprycel reduced to 70mg
I wanted to drop to 50mg but agreed to 70mg for now
9/9/17 0.079% IS
11/10/17 0.020% IS
12/23/17 0.030% IS Staying on 70mg Sprycel
#11
cmljax
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Posted 25 September 2017 - 07:46 AM
Happy World CML day 3 days late. Ironically enough, my diagnosis was on 9/22/16.
Dx 9/26/16 WBC 28800; platelets 749; FISH 97% PCR 43%
Tasigna 600MG per day
October 2016 PCR 22% IS
November 2016 PCR 5.8% IS
December 2016 PCR 0.1% IS MMR!!
March 10, 2017 PCR 0.006% IS MR 4.22
Tasigna 450MG per day
April 5, 2017 PCR <.003% IS
June 5, 2017 PCR <.003% IS (dose reduction validated!!!)
Tasigna 300MG per day starting June 15, 2017
6-day drug break starting June 20, 2017 due to multiple AE's
July 24, 2017 PCR <.003% IS
September 18, 2017 Negative, AKA PCRU
Tasigna 150mg per day starting 9/18/17
October 30, 2017 Negative
December 11, 2017 Negative
#12
Cathy
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Posted 25 September 2017 - 08:18 AM
Very Talented ! Made my day! And quite the Artist....
thank you !
Cathy
Cathy
DX 5-2010 Started normal hydra then Gleevec for 9 months stopped working
Tasigna after 5 pills pancreatis numbers jumped up quickly
Started Sprycel 100, 8-2010 for a 3 years went down to 50 mg numbers at one point really jumped up quickly
currently on 70 mg for last 2-3 years trying to get onc to reduce dose Numbers never stabilize never MMR till 4-2017 bearly and jump up and down in and out of MMR stayed MMR for 3 months then
After 6 years on sprycel fluid on both lungs, drained still have some fluid on lungs, and currently off drug 4 months now
numbers lower then ever go figure I've never been this low of a number
last 2 tests .0686 and .0181 !!
#13
John
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Posted 25 September 2017 - 11:32 AM
John - That's terrific! Great talent. Lots of verve, energy and movement in the lines, great composition, clean and confident drawing, humor, style - wow! My son, who's now a bona fide rock musician as a grownup, used to draw all day, every day. Could I have permission to send Gleevec Man to show him? He would love it even though I hated Gleevec and am a Sprycel girl. Hey, could your daughter draw Sprycel Girl?
I just got a chance to catch up on the replies, I'm glad you guys all thought it was cute and funny like I did. I talked to my daughter and she says spread it around as much as you would like. She was like "Oh my god, you posted that online???" She thinks it's super cheesy...and it is a little cheesy, but totally cute!
#14
minu
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Posted 03 October 2017 - 11:19 AM
John, happy cml day from Bangladesh. what a beautiful gift from your wonderful daughter. Loved it. made me laugh. Minu
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