15 replies to this topic

[jmoorhou]

It is supposed to work for basal cell, tinnitus and other conditions, there is also something called Aldara that you can put on BCs instead of cutting them off..

https://www.leafly.c...ick-simpson-oil

[Trey]

It depends on the depth.  Once the BCC is big enough to notice, it is usually too late to try any of these "remedies". 

 

I think sulfuric acid also works, and lye, a propane torch, fermented squirrel pee, and maybe an eye of newt poultice, too.  Some side effects can occur.  This is possibly where "losing face" came from, but not certain about that.

[Tucker1]

Trey, appreciated the chuckle.

[jmoorhou]

Aldara does work on basal cell, I've used it....thought I would post this for the people who have tinnitus, it does work for that, you need to get a high CBD ratio to THC..

[Antilogical]

It depends on the depth.  Once the BCC is big enough to notice, it is usually too late to try any of these "remedies". 

 

I think sulfuric acid also works, and lye, a propane torch, fermented squirrel pee, and maybe an eye of newt poultice, too.  Some side effects can occur.  This is possibly where "losing face" came from, but not certain about that.

 

I just had a flashback after reading Trey's response:

Volunteering at my local wildlife rehab center, I was cleaning out some squirrel cages.  One of the critters climbed on the cage door, watching me.  I looked up at him, he showed me his junk, then peed all over me.  I'm sure he meant it as a compliment.  To date, I have never had basal cell carcinoma.  Now I know why.  Squirrel pee works.  Obviously.

[Goldfinger]

Thanks for that. I needed a good laugh. But are you sure it was the squirrel pee? Trey says it has to be fermented in order for it to work.

[ROMO]

Hello Guys and Dolls,

 

New fellow here. Here is the story...

 

Woke up one Sunday morning last August 2016, with the most painful

stomach ache I ever had. So bad it was that I got my wife, of 30 years up

and had her drive me to the hospital right away. This would be the third

time I went to a hospital in my 65 years. Not counting the day I was born.

as the great philosopher once said, " I think, therefore I was born"?

 

And the Doc said I got good news and bad news. The good news is you

got kidney stones but they already passed and we will give you some

happy pills and you will be OK. The bad news is your WBC is 160K.

You got leukemia. But we don't know what kind so here is the number for

our local ONC So.'s you can get a nice BMB, to find out your troubles.

 

I went for my BMB a few days later with a few happy pills in me so the

experience wasn't too bad. At least what I remember of it.

Afterwards the ONC said I got some bad news and good news. The bad

news is you have CML and there's no cure. The good news is all you have

to do is take a pill and you will feel better in a few months.

 

He put me on 100mg Sprycel. I was house-bound for at least two

months and the third month I was able to get out every few days,

and things got better and now one year later I am back to work

(self employed), and almost as good as I was before. But we all know

about the, 'almost as good as new stuff!'.

 

My BMB gave me 36% disease rating (?). I am not quite sure what that

means, but I think it was how many PH+ cells I had in the blood work,

along with the 160k WBC, and a few other abnormalities that go with the

show, and after weekly CBC, the WBC dropped to normal levels

within 5 weeks. A few high and lows in the platelets and liver enzymes

but never in any danger zones.

 

After 5 months my PCR was .146. last month, my 11 month since DX

my PCR is .022.

 

I think from reading you Guys and Dolls these numbers sound pretty good.

And I am encouraged to lower the Sprycel to 50mg. Although I tolerate it

OK it's not without noticeable side affects and I too am concerned about

long term toxicity. Especially if long term treatment will be needed.

Now here's the rub. I live in a very small town and the cancer clinic I go

to in the next small town has maybe 3-4 CML patients. I know I asked the

ONC. However my town is just across the water from Seattle. So all my

labs are sent there, And the ONC has those resources if needed.

But he's not going to agree to the dosage drop. I believe it's the "It's

working, now shut up take the meds, go live your life. I have more sick

folks then you. We are not a research lab."

 

I just wanted people to tell all this to besides my wife who tells me

whatever I want is OK with her. She's such a sweety. 

 

PS. Cannabis does not affect cancer. In any way. Except perhaps when

The Grateful Dead is on the stereo. Only then Cancer can go away.

Temporally.

 

The names Romo by the way.

A member of the private exclusive club that nobody want's to be in.

[gerry]

Welcome Romo :-)

[ROMO]

Thank You Gerry.

It's a nice day today here in the Pacific North West.

I'm going to mow my yard and feel good about that today.

I got a riding mower.  I think I'll try the cannabis and the

"Hops",  as a CML trial in this new theory.

 

I've got nothing to lose.

 

Bless the person that's got his own.

 

...great song.

 

romo

[Trey]

The 100mg is a lot.  With your PCR numbers (two in a row) at the major goal of Major Molecular Response (MMR) you can afford to reduce dosage.  The Onc may prescribe your pills, but only you put them into your mouth. 

 

By the way, anyone who picks the "cannabis and squirrel pee" posting to do your intro is quirky.  You will fit right in here.

Edited by Trey, 27 August 2017 - 07:46 PM.

[PhilB]

Very interesting thread.  I think I can see some commercial possibilities for a friend of mine...

[ROMO]

Don't we have human trials going on right now? Now that it's

legal in Washington and Colorado all that's needs to be done is

watch the respective cancer rates in these states. It they stay

the same then there would be nothing to this. But if they drop

and what types of cancer drop or change we have the data.

No need to sign up or go to the Dr.

 

Then there's the, if it works, it will be prescription only.

And the cost will be $12,000 a month US, and $100 in Canada.

 

Romo

[gerry]

Very interesting thread. I think I can see some commercial possibilities for a friend of mine...

Hi Phil,
Are you still out on the kayak?

[PhilB]

I am indeed.  In fact I just got back from club night at the local Canoe and Kayak club.  Still on 200mg Imatinib and last test showed me holding steady at about 4.5 log.  Counting down the months to early retirement. 

I hope all here are doing well and managing to enjoy life.

[hannibellemo]

PhilB,

 

Happy to hear about the early retirement! I retired the end of Dec. 2016 and highly recommend it. Caution though, thinking I might need something to keep me entertained, I developed the urge to get chickens. I love eggs and hate the grocery store models. I have 8 and have purchased my coops and run from Omlet in the UK. Who knows backyard chickens better than you Brits?!

 

Glad to read all is still good for you!

[PhilB]

Hi Pat.  Glad to hear retirement is suiting you.  Still think of you and the other Pat every time we go past Old Sarum.  Can you believe my boys are now nearly 12 and 14!  Whatever you do, don't add up the cost of feed, chickens, fencing, fancy chicken house etc and divide it by the number of eggs you get as you may find it would be cheaper to buy Faberge ones instead!