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Night sweats and/or heat for intolerance


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#1 tiredblood

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Posted 25 July 2017 - 06:37 PM

Anyone else still have night sweats after maintaining PCRU?

#2 gerry

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Posted 26 July 2017 - 05:21 PM

I never had them till I hit menopause, then my cooling system broke.

#3 jmoorhou

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Posted 04 August 2017 - 12:38 AM

Night sweats might indicate the cancer is gaining some ground (I would think since that is one of the symptoms...tempory of course just have to increase dose. Same thing is happening with my spleen. Might need to increase dosage just to keep those devils down.
Diagnosed 3/2014 WBC 28 Non detectable within 3 monthsGleevec 400 mg 5/2014 one hour after dinner really improves nausea300 mg 12/15/2016200 mg and 300 mg Gleevec 2/25/2017 (after 3 years on Gleevec) For last four months taking 300 mg per day. Last CMC showed liver enzymes elevated, went to a good Naturopath and he recommended 4 Tumeric, 10,000 mg Vitamen D, and 3 milk thistle (silymarin) daily. Also use One<p>Day Detox Dandeloin tea, and Nettle Tea and a slice of ginger every day...in two months liver tests were below normal.Janis

#4 gerry

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Posted 04 August 2017 - 01:45 AM

I never had night sweats - if PCRU is being maintained by tired blood then something else may be causing it, change in other medication perhaps?

#5 cmljax

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Posted 04 August 2017 - 08:52 AM

Nights sweats are listed as a common side effect of Tasigna and a less common side effect of Gleevec.  Nights sweats are one of the few side effects I have not had on Tasigna.  I agree with Gerry - at PCRU, there is no way CML could be causing the night sweats


Dx 9/26/16 WBC 28800; platelets 749; FISH 97% PCR 43%

Tasigna 600MG per day

October 2016                     PCR 22% IS

November 2016                 PCR 5.8% IS

December 2016                 PCR 0.1% IS  MMR!!

March 10, 2017                 PCR 0.006% IS  MR 4.22

Tasigna 450MG per day

April 5, 2017                      PCR <.003% IS

June 5, 2017                     PCR <.003% IS (dose reduction validated!!!)

Tasigna 300MG per day starting June 15, 2017

6-day drug break starting June 20, 2017 due to multiple AE's

July 24, 2017                     PCR <.003% IS

September 18, 2017          Negative, AKA PCRU

Tasigna 150mg per day starting 9/18/17

October 30, 2017               Negative

December 11, 2017           Negative


#6 gerry

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Posted 04 August 2017 - 04:40 PM

I remember some earlier threads on people having this side effect.
Here is one of the threads http://community.lls...s/?fromsearch=1
You can do a search on night sweat to find the others.

#7 rcase13

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Posted 04 August 2017 - 10:15 PM

I take Tasigna and sweat like a pig at night... Just saying...

10/01/2014 100% Diagnosis (WBC 278k, Blasts 6%, Spleen extended 20cm)

01/02/2015 0.06% Tasigna 600mg
04/08/2015 0.01% Tasigna 600mg
07/01/2015 0.01% Tasigna 600mg
10/05/2015 0.02% Tasigna 600mg
01/04/2016 0.01% Tasigna 600mg
04/04/2016 PCRU Tasigna 600mg
07/18/2016 PCRU Tasigna 600mg
10/12/2016 PCRU Tasigna 600mg
01/09/2017 PCRU Tasigna 600mg
04/12/2017 PCRU Tasigna 600mg
10/16/2017 PCRU Tasigna 600mg
01/15/2018 PCRU Tasigna 600mg

 

Cancer Sucks!


#8 tiredblood

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Posted 05 August 2017 - 06:28 PM

Hem/onc wants to test for Cushing's, i.e. Elevated cortisol levels as my WBCs have climbed back to 17.59K. Actually WBCs and neutrophils have remained elevated in spite of maintaining PCRU for the most part.




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