Well I was Dx May 2010. and its been up and down number wise for me. Just hit MMR in the past 9 months I go in and out of it. Now first time I have a PE and a collapsed lung. After 6 years on Sprycel I get one now. Crazy. I'm on 70 mg and have been for 1 year or more. Lately I was trying to get him to reduce it but my numbers tend to go up when I do. Now I have this water and lung issue. Really can't breathe very good but they are having me do a stress test and heart ekco before they address the lung. so its been a long time I can't breathe! LOL hoping they just drain this thing so I can breathe!
I know I need to do my history in my signature I will.
take care everyone
Started on Gleevec for year stop working so go to Tasinga got pancreatis immediately
started sprycel 100 mg for like 3-4 yrs, tried 50 mg numbers went up, now 70 mg for past year
Surprised to get a PE at this point 7 years in.