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Newbie confused about bone marrow, and blood tests

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#21 Snowwhite



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Posted 19 April 2017 - 09:11 PM

Also Kat I had read about some bad effects if Nexium even before CML, MD Anderson advised to take it 12 hours apart. I chose to stop it entirely. I just do alka seltzer antacid when needed. I take my Gleevec around noon and if I take antacid it is generally at bedtime

#22 kat73


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Posted 20 April 2017 - 10:46 AM

Snowwhite - All sounds and looks good.  Yay!

Dx July 2009 on routine physical.  WBC 94.  Started Gleevec 400 mg Sept 2009.  MMR at 2yrs.  Side effects (malaise, depression/anxiety, fatigue, nausea, periorbital edema) never improved.  Kidney issues developed because of Gleevec.  Switched to Sprycel 70 mg in Aug 2011.  Above side effects disappeared or improved.  Have been MR3.5 - 4.5 ever since.  Two untreated pleural effusions followed by one treated by stopping Sprycel Jan 2017.  After 9 weeks, PCR showed loss of MMR; re-started Sprycel at 50 mg and in 3 months was back to <0.01% IS.  Pleural effusion returned within a couple of months, same as before (moderate, left side only).  Stopped Sprycel 50 mg for 12 weeks; pleural effusion resolved.  At about a monthoff the drug, PCR was 0.03; at 11 weeks it was 2.06 - lost CCyR? Have returned to 50 mg Sprycel for 3 weeks, intending to reduce to 20 mg going forward.

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