Also Kat I had read about some bad effects if Nexium even before CML, MD Anderson advised to take it 12 hours apart. I chose to stop it entirely. I just do alka seltzer antacid when needed. I take my Gleevec around noon and if I take antacid it is generally at bedtime
Newbie confused about bone marrow, and blood tests
Started by
Snowwhite
, Apr 17 2017 12:14 PM
21 replies to this topic
#22
kat73
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Posted 20 April 2017 - 10:46 AM
Snowwhite - All sounds and looks good. Yay!
Dx July 2009 on routine physical. WBC 94. Started Gleevec 400 mg Sept 2009. MMR at 2yrs. Side effects (malaise, depression/anxiety, fatigue, nausea, periorbital edema) never improved. Kidney issues developed because of Gleevec. Switched to Sprycel 70 mg in Aug 2011. Above side effects disappeared or improved. Have been MR3.5 - 4.5 ever since. Two untreated pleural effusions followed by one treated by stopping Sprycel Jan 2017. After 9 weeks, PCR showed loss of MMR; re-started Sprycel at 50 mg and in 3 months was back to <0.01% IS. Pleural effusion returned within a couple of months, same as before (moderate, left side only). Stopped Sprycel 50 mg for 12 weeks; pleural effusion resolved. At about a monthoff the drug, PCR was 0.03; at 11 weeks it was 2.06 - lost CCyR? Have returned to 50 mg Sprycel for 3 weeks, intending to reduce to 20 mg going forward.
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