I was DX September 2014 and i would hope to be undetected by now but I still haven't achieved getting under 1% my Onc doesn't want me to worry at this point unless I go up. I know there is a better success rate if i hit 1% goal within 24 months of DX and thats pretty much long gone. I was on gleevec until August 2016 and now i am on Sprycel and I still haven't gone under 1%. I am wondering if i should start looking for a specialist ? My Onc said he didn't think so at this time, he said he wants me to be on spycel for a full year before we decide to change to another TKI unless my numbers change drastically.
I want to know anyone opinion on this matter specially those of you who call themselves turtles good and bad experiences ?
BCR-ABL1/ABL1 1.87 on 10/2/2014
BCR-ABL1/ABL1 .642. on 12/3/2014
BCR-ABL1/ABL1 .016. on 3/12/2015
BCR-ABL1/ABL1 .011. on 5/9/2015
BCR-ABL1/ABL1 .012. on 8/13/2015
BCR-ABL1/ABL1 .0068. on 1/21/2016
BCR-ABL1/ABL1 .0097. on 6/2/2016
Missing on for September
BCR-ABL1/ABL1 .0021 on 11/4/16 IS scale .22%
BCR-ABL1/ABL1 .0027 on 1/30/2017 IS scale .20%
Sorry I do not have the IS scale for all of the test