Barbara B just contacted me and is trying to get on this forum (I suggested it to her from the Community site). She said she is getting a message saying 'Oops, you are not allowed to register on this forum'.
Any suggestions to help her out?
Problem registering on this site
Started by
hannibellemo
, Jan 26 2017 01:36 PM
2 replies to this topic
#1
hannibellemo
-
- Members
-
- 728 posts
Advanced Member
- LocationNorth Central Iowa
Posted 26 January 2017 - 01:36 PM
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
#2
BarbaraB
-
- Members
-
- 6 posts
New Member
- LocationNorthern Virginia
Posted 27 January 2017 - 03:56 PM
Hi Hannibellemo! Its me Barbara....
Admin person apparently got the same error message when trying to register..so something going on with the website.
They were able to register me though and they are looking into the other issue.
thanks for the help!
Husband's Diagnosis: 1/11/2017- WBC 211,000. Hydroxyurea 500 bid & Allopurinol started.
1/16 - BMB- FISH = 95% bcr/abl. 1% blasts. Sprycel 100 mg added to hydroxyurea
1/27 WBC = 54,000 -- hydroxy stopped.
2/3 WBC = 8
2/9= Hematologic Response !! WBC= 5, platelets= 300, peripheral smear no abnormal cells. Allopurinol stopped.
#3
hannibellemo
-
- Members
-
- 728 posts
Advanced Member
- LocationNorth Central Iowa
Posted 27 January 2017 - 05:41 PM
Hi, Barbara,
Glad you made it! Be sure and take a look at Trey's post, "Readings for the Newly Diagnosed CML Patient". Suggest your husband read it, too!
Pat
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
1 user(s) are reading this topic
0 members, 1 guests, 0 anonymous users
