TeddyB - I am so sorry to call attention to you in this ridiculous manner - nobody had any other ideas for me as to reaching out. I sent you a private email message a couple of weeks ago. Did you get it? Again, my apologies - I am a computer dummy and quite possibly didn't send it right.
TeddyB I sent you a message
Started by
kat73
, Jan 10 2017 02:30 PM
6 replies to this topic
#1
kat73
-
- Members
-
- 884 posts
Advanced Member
- LocationWashington, DC area
Posted 10 January 2017 - 02:30 PM
Dx July 2009 on routine physical. WBC 94. Started Gleevec 400 mg Sept 2009. MMR at 2yrs. Side effects (malaise, depression/anxiety, fatigue, nausea, periorbital edema) never improved. Kidney issues developed because of Gleevec. Switched to Sprycel 70 mg in Aug 2011. Above side effects disappeared or improved. Have been MR3.5 - 4.5 ever since. Two untreated pleural effusions followed by one treated by stopping Sprycel Jan 2017. After 9 weeks, PCR showed loss of MMR; re-started Sprycel at 50 mg and in 3 months was back to <0.01% IS. Pleural effusion returned within a couple of months, same as before (moderate, left side only). Stopped Sprycel 50 mg for 12 weeks; pleural effusion resolved. At about a monthoff the drug, PCR was 0.03; at 11 weeks it was 2.06 - lost CCyR? Have returned to 50 mg Sprycel for 3 weeks, intending to reduce to 20 mg going forward.
#2
gerry
-
- Members
-
- 1,035 posts
Advanced Member
Posted 10 January 2017 - 05:44 PM
:-) PMs are easy to miss.
#3
Trey
-
- PS Beta Group
-
- 1,705 posts
Advanced Member
- LocationSan Antonio, Texas
Posted 10 January 2017 - 08:09 PM
Teddy is Norwegian. He is in hibernation until Spring....unless you happen to catch him when he exits hibernation for that winter solstice jump into a nearly frozen lake while naked thingy.....at that point his "PMs" will be nearly invisible.
Edited by Trey, 10 January 2017 - 08:09 PM.
#4
tiredblood
-
- Members
-
- 474 posts
Advanced Member
Posted 10 January 2017 - 10:13 PM
I must admit that during the recent winter storm we had in our area, I got very sleepy. Hibernation did cross my mind, especially after our pets slept a lot during that time.
#5
gerry
-
- Members
-
- 1,035 posts
Advanced Member
Posted 11 January 2017 - 12:10 AM
I think if you leave a cup of mulled wine near his habitat it might bring him out of hibernation. :-)
#6
TeddyB
-
- Members
-
- 203 posts
Advanced Member
Posted 12 January 2017 - 11:50 AM
Sorry for the late reply, not checking in as often as i used to.
Trey and Gerry: Yes, both ice-bathing and wine will get my attention 
Kat73: I got your message now and will answer after i have gotten my kids to sleep.
#7
kat73
-
- Members
-
- 884 posts
Advanced Member
- LocationWashington, DC area
Posted 12 January 2017 - 04:24 PM
OK everybody, TeddyB and I have connected, so this thread is done. Unless, of course, you want to keep talking about hibernation in Norway with mulled wine. Hm . . . . that DOES sound good!
Dx July 2009 on routine physical. WBC 94. Started Gleevec 400 mg Sept 2009. MMR at 2yrs. Side effects (malaise, depression/anxiety, fatigue, nausea, periorbital edema) never improved. Kidney issues developed because of Gleevec. Switched to Sprycel 70 mg in Aug 2011. Above side effects disappeared or improved. Have been MR3.5 - 4.5 ever since. Two untreated pleural effusions followed by one treated by stopping Sprycel Jan 2017. After 9 weeks, PCR showed loss of MMR; re-started Sprycel at 50 mg and in 3 months was back to <0.01% IS. Pleural effusion returned within a couple of months, same as before (moderate, left side only). Stopped Sprycel 50 mg for 12 weeks; pleural effusion resolved. At about a monthoff the drug, PCR was 0.03; at 11 weeks it was 2.06 - lost CCyR? Have returned to 50 mg Sprycel for 3 weeks, intending to reduce to 20 mg going forward.
1 user(s) are reading this topic
0 members, 1 guests, 0 anonymous users
