BP has been running about 150/85, doctor is gonna put me on BP meds. Im 47.
Anyone have any idea what they will start me on?
Posted 16 November 2016 - 08:13 PM
BP has been running about 150/85, doctor is gonna put me on BP meds. Im 47.
Anyone have any idea what they will start me on?
January 15: .53%
April 15: .78%
July 15: 1.1% - upped dosage to 400mg after this test
Oct 15: .85%
December 15: .28%
March 16: .29%
July 16: .34%
October 16: .11%
January 17: .081%
April 17: .055%
July 17: .135%
Oct 17: .008%
Posted 17 November 2016 - 05:22 PM
Posted 18 November 2016 - 08:49 PM
I'm putting my $ on metoprolol. On another topic, congrats on that October 0.11%
Posted 22 November 2016 - 07:59 PM
Diagnosed in September 2011. Tried one year of Sprycel. Had great response. Became undetectable in a few months. Changed to Tasigna hoping for less side effects. Self medicated myself down to 20% dose and held for 3 years before becoming detectable again. It has been a journey that has helped me realize what life is about! I am all about a balanced life. I firmly agree with my decision to lower my dose. What is life if you aren't living? Mine will never be the way it was, but it is going to be as good as I can make it! Drs PRACTICE medicine, we can guide our dr to help us with a better life! Don't settle until it's acceptable to you!
Posted 22 November 2016 - 09:52 PM
Posted 25 November 2016 - 03:09 PM
They put me on 25mg of Cozaar (Lorastan Potassium). I just gotta lose weight and get in shape. Or Ill just drink some bleach and power down.
January 15: .53%
April 15: .78%
July 15: 1.1% - upped dosage to 400mg after this test
Oct 15: .85%
December 15: .28%
March 16: .29%
July 16: .34%
October 16: .11%
January 17: .081%
April 17: .055%
July 17: .135%
Oct 17: .008%
Posted 25 November 2016 - 10:32 PM
Posted 26 November 2016 - 11:34 AM
Always a conundrum to me: Be. Happy. Hmmm. When don't feel happy. Hmmm.
JPD - I sympathize. You've got one more thing to contend with, and OF COURSE, it comes attached to a few more dangling things to get used to. A person starts to feel very old, and like damaged goods. Worst of all, like nothing is ever going to get better, only worse. Drinking bleach is not the answer, however! You have moved on and moved through before, shouldering your burdens, and that is all anyone can ask of you.
What I hope for you is that, someday, you will feel happiness. I'm betting on it.
Dx July 2009 on routine physical. WBC 94. Started Gleevec 400 mg Sept 2009. MMR at 2yrs. Side effects (malaise, depression/anxiety, fatigue, nausea, periorbital edema) never improved. Kidney issues developed because of Gleevec. Switched to Sprycel 70 mg in Aug 2011. Above side effects disappeared or improved. Have been MR3.5 - 4.5 ever since. Two untreated pleural effusions followed by one treated by stopping Sprycel Jan 2017. After 9 weeks, PCR showed loss of MMR; re-started Sprycel at 50 mg and in 3 months was back to <0.01% IS. Pleural effusion returned within a couple of months, same as before (moderate, left side only). Stopped Sprycel 50 mg for 12 weeks; pleural effusion resolved. At about a monthoff the drug, PCR was 0.03; at 11 weeks it was 2.06 - lost CCyR? Have returned to 50 mg Sprycel for 3 weeks, intending to reduce to 20 mg going forward.
Posted 26 November 2016 - 11:58 AM
JPD, you aren't the only one. I was reluctantly started on BP meds at 37 and just a few months after my 40th birthday I was hit with the CML diagnosis. I have thought about drinking (not bleach) but my poor liver would probably shut down after my first sip of alcohol. I definitely understand how you feel, but there is a long way to go before we start reaching for the Clorox. Hopefully we will never get to that point, but if we do the second round is on me. In the meantime, I try to stay optimistic about current research and the potential for a cure. I also try to find comfort in the fact that by the time I reach retirement age Sprycel may cost the same as aspirin...
3/23/2016 Dx PCR 93.4399% IS, FISH 87%
3/30/16 Sprycel 100mg
4/15/2016 liver toxicity and a brief stint on Tasigna 600mg book-ended by drug breaks
6/6/2016 resumed Sprycel at 50 mg increased to 70 one month later followed by 100mg
6/17/2016 FISH Test 2%
8/22/2016 PCR 0.0035% IS
11/7/2016 PCRU
12/29/2016 PCRU
4/5/2017 PCRU
6/28/2017 PCRU
10/26/2017 PCRU
Posted 28 November 2016 - 04:35 AM
I always had low blood pressure, now for the past 4 years it's high. I take 2 bp meds and the water pill. Just starting to get it under control now I hope. I hate that crap!!!!!
Billie
Posted 28 November 2016 - 04:42 AM
BP has been running about 150/85, doctor is gonna put me on BP meds. Im 47.
Anyone have any idea what they will start me on?
JPD, It took 8 different bp meds to find one that I could tolerate. I take 5mg Bystolic and 20mg Lasix in the a.m. and I take ,01 mg clonidine in the p.m.. I'm a damn BP junkie
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