Chris, I have very good insurance thru my job. Unfortunately will pay $800 a month to keep covered for the next 13 months until Medicare kicks in. No longer working due to TKI side effects. Thought a trip to Canada might be cheaper although I have other stuff going on that makes it advisable to keep medical insurance.
Moving to Generic Imatinib
Started by
Dom
, Nov 08 2016 02:11 AM
30 replies to this topic
#21
Gail's
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Posted 18 November 2016 - 01:41 PM
Diagnosed 1/15/15
FISH 92%
BMB 9:22 translocation
1/19/15 began 400 mg gleevec
1/22/15 bcr 37.2 IS
2/6/15 bcr 12.5 IS
3/26/15 bcr 10.3 IS
6/29/15 bcr 7.5 IS
9/24/15 bcr 0.8 IS
1/4/16 bcr 0.3 IS
Started 100 mg dasatinib, mutation analysis negative
4/20/16 bcr 0.03 IS
8/8/16 bcr 0.007 IS
12/6/16 bcr 0.002 IS
Lowered dasatinib to 70 mg
4/10/17 bcr 0.001 IS
Lowered dasatinib to 50 mg
7/5/17 bcr 0.004 IS
8/10/17 bcr 0.001. Stopped TKI in prep for September surgery.
9/10/17 bcr 0.006
10/10/17 bcr 0.088
FISH 92%
BMB 9:22 translocation
1/19/15 began 400 mg gleevec
1/22/15 bcr 37.2 IS
2/6/15 bcr 12.5 IS
3/26/15 bcr 10.3 IS
6/29/15 bcr 7.5 IS
9/24/15 bcr 0.8 IS
1/4/16 bcr 0.3 IS
Started 100 mg dasatinib, mutation analysis negative
4/20/16 bcr 0.03 IS
8/8/16 bcr 0.007 IS
12/6/16 bcr 0.002 IS
Lowered dasatinib to 70 mg
4/10/17 bcr 0.001 IS
Lowered dasatinib to 50 mg
7/5/17 bcr 0.004 IS
8/10/17 bcr 0.001. Stopped TKI in prep for September surgery.
9/10/17 bcr 0.006
10/10/17 bcr 0.088
#22
gerry
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Posted 18 November 2016 - 05:41 PM
Would your insurance company cover you for buying from Canada. I know it is close to $4000 Aust a month here to buy Gleevec without our National Health scheme, you have to be a citizen to get the subsidy. Plus you would need to be seeing one of our docs to get a recognised script.
#23
campanula
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Posted 18 November 2016 - 08:16 PM
Results just in! Looks like I made it!
Dx 2/16: PCR = 59.4%
BMB showed second translocation.
400 mg generic Imatinib
5/16: PCR = 0.88%
8/16: PCR = 0.04%
11/16 PCR = 0.01%
2/17 PCR < 0.01%
2/17 BMB results: all translocations gone.
6/17 PCR = 0.03%
9/17 PCR = 0.01%
1/18 PCR = 0.01%
#24
Buzzm1
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Posted 18 November 2016 - 10:23 PM
Results just in! Looks like I made it!
11/16 BCR/ABL p210=0.001
Great news Campanula!
For the benefit of yourself and others please add your CML history into your Signature
02/2010 Gleevec 400mg
2011 Two weakly positives, PCRU, weakly positive
2012 PCRU, PCRU, PCRU, PCRU
2013 PCRU, PCRU, PCRU, weakly positive
2014 PCRU, PCRU, PCRU, PCRU (12/07 began dose reduction w/each continuing PCRU)
2015 300, 250, 200, 150
2016 100, 50/100, 100, 10/17 TFR
2017 01/17 TFR, 04/18 TFR, 07/18 TFR 0.0012, 08/29 TFR 0.001, 10/17 TFR 0.000
2018 01/16 TFR 0.0004 ... next quarterly PCR 04/17
At the earliest opportunity, and whenever possible, lower your TKI dosage; TKIs are toxic drugs and the less we take longterm the better off we are going to be ... this is especially true for older adults.
In hindsight I should have started my dosage reduction two years earlier; it might have helped minimize some of the longterm cumulative toxic effects of TKIs that I am beset with.
longterm side-effects Peripheral Artery Disease - legs (it's a bitch); continuing shoulder problems, right elbow inflammation. GFR and creatinine vastly improved after stopping Gleevec.
Cumulative Gleevec dosage estimated at 830 grams
Taking Gleevec 400mg an hour after my largest meal of the day helped eliminate the nausea that Gleevec is notorious for.
Trey's CML Blog - Stopping - The Odds - Stop Studies - Discussion Forum Cessation Study
Big PhRMA - Medicare Status - Social Security Status - Deficit/Debt
#25
Gail's
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Posted 21 November 2016 - 01:06 AM
Gerry, thanks for response. I thought the monthly cost was much lower in Canada. No, insurance only covers meds available in US. Guess I'll bite the bullet and be glad there's an end in sight to the high premiums.
Way to go, campanula!
Way to go, campanula!
Diagnosed 1/15/15
FISH 92%
BMB 9:22 translocation
1/19/15 began 400 mg gleevec
1/22/15 bcr 37.2 IS
2/6/15 bcr 12.5 IS
3/26/15 bcr 10.3 IS
6/29/15 bcr 7.5 IS
9/24/15 bcr 0.8 IS
1/4/16 bcr 0.3 IS
Started 100 mg dasatinib, mutation analysis negative
4/20/16 bcr 0.03 IS
8/8/16 bcr 0.007 IS
12/6/16 bcr 0.002 IS
Lowered dasatinib to 70 mg
4/10/17 bcr 0.001 IS
Lowered dasatinib to 50 mg
7/5/17 bcr 0.004 IS
8/10/17 bcr 0.001. Stopped TKI in prep for September surgery.
9/10/17 bcr 0.006
10/10/17 bcr 0.088
FISH 92%
BMB 9:22 translocation
1/19/15 began 400 mg gleevec
1/22/15 bcr 37.2 IS
2/6/15 bcr 12.5 IS
3/26/15 bcr 10.3 IS
6/29/15 bcr 7.5 IS
9/24/15 bcr 0.8 IS
1/4/16 bcr 0.3 IS
Started 100 mg dasatinib, mutation analysis negative
4/20/16 bcr 0.03 IS
8/8/16 bcr 0.007 IS
12/6/16 bcr 0.002 IS
Lowered dasatinib to 70 mg
4/10/17 bcr 0.001 IS
Lowered dasatinib to 50 mg
7/5/17 bcr 0.004 IS
8/10/17 bcr 0.001. Stopped TKI in prep for September surgery.
9/10/17 bcr 0.006
10/10/17 bcr 0.088
#26
edenation
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Posted 21 November 2016 - 10:41 AM
who is currently paying full price for Gleevec?
#27
gerry
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Posted 21 November 2016 - 03:42 PM
Gerry, thanks for response. I thought the monthly cost was much lower in Canada. No, insurance only covers meds available in US. Guess I'll bite the bullet and be glad there's an end in sight to the high premiums.
Way to go, campanula!
#28
gerry
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Posted 21 November 2016 - 03:42 PM
Gerry, thanks for response. I thought the monthly cost was much lower in Canada. No, insurance only covers meds available in US. Guess I'll bite the bullet and be glad there's an end in sight to the high premiums.
Way to go, campanula!
#29
gerry
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Posted 21 November 2016 - 03:48 PM
We pay just under $40 a month here for Gleevec. Reminder is covered by the government through our higher taxes, would think Canada is similar.Gerry, thanks for response. I thought the monthly cost was much lower in Canada. No, insurance only covers meds available in US. Guess I'll bite the bullet and be glad there's an end in sight to the high premiums.
Way to go, campanula!
#30
rosegrace
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Posted 24 November 2016 - 12:54 AM
I'll be starting Veenat Imatinib today. I hope everything goes well. Did anyone tried this before?
#31
edenation
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Posted 24 November 2016 - 11:38 AM
I am taking Veenat too. Where do you get your supply from?
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