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#1 Mr.Tee


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Posted 31 October 2016 - 03:16 PM



#2 hannibellemo


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Posted 31 October 2016 - 05:21 PM

Well, they do need to make "reasonable accomodations" for you at work. Have you been released to go back to work with no conditions? Let your doctor know what your life is like and see what they can do for you? If you haven't been released yet definitely let your doc know what is going on. 


Good luck, Mr. Tee! Hope your recovery gets better for you!



"You can't change the direction of the wind but you can adjust your sails."

DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>

#3 Melanie


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Posted 31 October 2016 - 06:26 PM

Me Tee, do you have any sort of medical leave available at your work...either short term or long term? Most places use to carry it. Of course there are certain criteria to qualify, but I'm certain you would.
If not available, maybe talking to your employer or HR department and explain what you're going through. There may be something they could work out to give you some relief.
So sorry for all you're enduring. Praying for you!
Dx - 05/2011; PCR: 15.04; Fish: 87% Slow responder due to pancytopenia. Current - Bosulif - Nov: 2012, Mar 2016 lowered to 300 mg. 07/16 back to 400 mg. Clinical trial drug, Promacta, Feb 2013, for low Platelets.
CyCR - Aug 2014, Positive for 1 chromosome Sep 2015. PCR: 12.77 in Oct, 2012 to 0.04 (MDA) in Mar, 2016. 4/2016 - 0.126 (Local lab (IS); 05/2016 - 0.195 (local); 6/2016 - 0.07 (MDA); 7/2016 - 0.03 (local) 9/13/2016 - 0.16 (MDA); 9/26/2016 - 0.31 (MDA); 11/2016 - 0.012 (local); 01/2017 - 0.24 (MDA); 04/2017 - 0.09 (MDA); Cytogenetics show der(1:7)(q10;p10)7 chromosome mutation. Repeat of Sep 2015. PCR - 6/2017- 0.035 (local); 10/2017- 0.02 (MDA)

#4 thatguy


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Posted 01 November 2016 - 12:45 AM

Judging by the fact that I used know a 22 year old who successfully and admittedly faked a back injury and collected government disability, while selling Oxycontin, and pursuing a rap career...id hope/say you certainly would be eligible for something, Mr T. I really hope you get some good news soon.
3/25/2015- Dx'ed by FISH : 85% of cells dual-fusion signals, 7% with tri-fusion signals, WBC 212,000. Started Gleevec 400mg.... Calculated .93 SOKAL

08/17/2015- 14.793 % I.S P210 (quest)
10/15/2015- 3.313 % I.S (quest)
12/23/2015- 1.891 % I.S (quest)
1/07/2016- Tasigna 300mg 2x daily
1/14/2016- 4.414 % I.S P210- City Of Hope lab, mutation negative.
1/26/2016- 1.589 % I.S (quest)
2/22/2016- 1.719 % I.S (quest)
2/29/2016- 1.133 % I.S (quest)
3/03/2016- Tasigna 400mg 2x daily.
3/29/2016- 0.663 % I.S (quest)
4/27/2016- 0.781 % I.S (quest)
5/04/2016- 0.652 % I.S.(quest)
5/24/2016- 0.501 % I.S (quest)
6/28/2016-0.534 % I.S (quest)
7/15/2016-0.881 % I.S (quest)
7/22/2016- Bosulif 500mg
7/28/2016- t315i test- Negative
8/22/2016-0.432 % I.S (quest )
11/15/2016-0.325 % I.S (quest)
2/1/2017- .0445% i.s (genoptix)
5/6/2017- .0968% i.s (genoptix)
5/12/2017- .12 % i.s (quest).
6/4/2017- .083% i.s (quest)
6/11/2017- .0295% i.s (genoptix)
8/5/2017- .0501% i.s (genoptix)
11/6/2017- .0270% i.s (genoptix)

#5 tazdad08


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Posted 01 November 2016 - 07:59 AM

I would definitely get an attorney and apply for disability. I will say that you have to be sure to focus on how the side effects are debilitating. You can still work while on disability. There is an income cap, but that allows you to focus your energy on the important things in life. I got approved after 2 years. I do still work part time, it helps me feel a little more productive. And having medicaide with all these dr bills is a huge relief.    

Diagnosed in September 2011. Tried one year of Sprycel. Had great response. Became undetectable in a few months. Changed to Tasigna hoping for less side effects. Self medicated myself down to 20% dose and held for 3 years before becoming detectable again. It has been a journey that has helped me realize what life is about! I am all about a balanced life. I firmly agree with my decision to lower my dose. What is life if you aren't living? Mine will never be the way it was, but it is going to be as good as I can make it! Drs PRACTICE medicine, we can guide our dr to help us with a better life! Don't settle until it's acceptable to you!

#6 cedespres



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Posted 01 November 2016 - 11:44 AM


Having 2 forms of cancer and 2 sets of side effects from medication are having a cumulative effect, specifically in relation to fatigue. I am still working but finding it very difficult to have a life where I am not asleep or being a couch potato.

Is there some sort of way that I can get a cumulative diagnosis that would allow me to work less or not at all, short of quitting my job which is not an option I can afford.

Hi Mr.Tee,

      I was a teacher when I became sick and qualified for a state disability pension. It is no where near the amount I used to make teaching but every little bit helps. I am sure you could qualify for some sort of disability( through Social Security) if you are in the US. If you are in Canada, there must be some form of disability. Two forms of cancer alone should warrant that and if you are like me you most likely have other health issues. The people that know the most about this are social workers. Your hospital should have a social work department and I would seek help from them.

     You are correct, we could be related with our 2 cancers being so similar. Keep up the fight and stay in touch.


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