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Posted 08 October 2016 - 04:37 PM
I found these while I was wasting more time then I would like to admit on Pinterest and thought I would share them with you. My hope is they will bring a smile and maybe a chuckle. While they appear to be aimed more at women I prefer to think of them as gender neutral!
dearest fatigue.jpg 27.07KB
5 downloads
extreme sexiness.jpg 16.77KB
2 downloads
If you tap on them they will open a larger window of the jpg. (Eat your heart out, Billie, I figured this out - sort of.)
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
Advanced Member
Posted 08 October 2016 - 04:48 PM
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
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Posted 08 October 2016 - 05:06 PM
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Posted 08 October 2016 - 06:25 PM
I found these while I was wasting more time then I would like to admit on Pinterest and thought I would share them with you. My hope is they will bring a smile and maybe a chuckle. While they appear to be aimed more at women I prefer to think of them as gender neutral!
If you tap on them they will open a larger window of the jpg. (Eat your heart out, Billie, I figured this out - sort of.)
Hi Pat, Oh those are perfect, sometimes it seems like someone else is reading our minds when they write these cartoons. How in the hell did you post them, I can't post a picture and every time I try to do something different I screw up my whole computer. Sometimes both computers. Then I have to call the geek squad, and they say "Okay Mam that's an easy problem to solve just go to your browser where the hashtag is" so the first half hour on the phone he is trying to explain what a browser bar is and what a hashtag is. So the easy fix usually takes 2 hours minumin. I know spelled it wrong, Those guys really deserve a raise after they talk to me.
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Posted 08 October 2016 - 07:28 PM
Love the second one. Seems like there should be some positive side effects. . . maybe that actually IS a side effect, but none of us ever noticed.
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Posted 08 October 2016 - 09:28 PM
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Posted 08 October 2016 - 11:19 PM
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Posted 09 October 2016 - 02:35 AM
Hi Pat, Oh those are perfect, sometimes it seems like someone else is reading our minds when they write these cartoons. How in the hell did you post them, I can't post a picture and every time I try to do something different I screw up my whole computer. Sometimes both computers. Then I have to call the geek squad, and they say "Okay Mam that's an easy problem to solve just go to your browser where the hashtag is" so the first half hour on the phone he is trying to explain what a browser bar is and what a hashtag is. So the easy fix usually takes 2 hours minumin. I know spelled it wrong, Those guys really deserve a raise after they talk to me.
The next time someone calls me mam I'm going to punch their lights out!
Advanced Member
Posted 09 October 2016 - 04:53 PM
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Posted 09 October 2016 - 05:10 PM
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Posted 09 October 2016 - 07:14 PM
Love the second one. Seems like there should be some positive side effects. . . maybe that actually IS a side effect, but none of us ever noticed.
Marnie,When you find one let us know.
Advanced Member
Posted 09 October 2016 - 07:19 PM
Hi Pat, Oh those are perfect, sometimes it seems like someone else is reading our minds when they write these cartoons. How in the hell did you post them, I can't post a picture and every time I try to do something different I screw up my whole computer. Sometimes both computers. Then I have to call the geek squad, and they say "Okay Mam that's an easy problem to solve just go to your browser where the hashtag is" so the first half hour on the phone he is trying to explain what a browser bar is and what a hashtag is. So the easy fix usually takes 2 hours minumin. I know spelled it wrong, Those guys really deserve a raise after they talk to me.
Pat, I'm sorry I hijacked your post, I just started typing and couldn't stop myself 
Advanced Member
Posted 09 October 2016 - 08:34 PM
Not a problem, Billie! This post was just for fun anyway.
Susan61,
18 years! That is so hard to believe. I know you've been struggling with other health issues, I'm so glad you took the time to post. At the risk of sounding like a broken record, I wonder if some of your side effects would disappear if you dropped your dose to 200 mg. I wouldn't think after 15 years PCRU (how delightfully boring your lab report must be. "Undetectible - again") there would be much danger.
Take care and come back soon!
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
Advanced Member
Posted 10 October 2016 - 02:47 AM
Nice to see you here Susan. Wish you would drop your dosage to at least 300mg, some of the Gleevec side effects will disappear for you. :-)
I've said the same thing myself more than once.
For the benefit of yourself and others please add your CML history into your Signature
02/2010 Gleevec 400mg
2011 Two weakly positives, PCRU, weakly positive
2012 PCRU, PCRU, PCRU, PCRU
2013 PCRU, PCRU, PCRU, weakly positive
2014 PCRU, PCRU, PCRU, PCRU (12/07 began dose reduction w/each continuing PCRU)
2015 300, 250, 200, 150
2016 100, 50/100, 100, 10/17 TFR
2017 01/17 TFR, 04/18 TFR, 07/18 TFR 0.0012, 08/29 TFR 0.001, 10/17 TFR 0.000
2018 01/16 TFR 0.0004 ... next quarterly PCR 04/17
At the earliest opportunity, and whenever possible, lower your TKI dosage; TKIs are toxic drugs and the less we take longterm the better off we are going to be ... this is especially true for older adults.
In hindsight I should have started my dosage reduction two years earlier; it might have helped minimize some of the longterm cumulative toxic effects of TKIs that I am beset with.
longterm side-effects Peripheral Artery Disease - legs (it's a bitch); continuing shoulder problems, right elbow inflammation. GFR and creatinine vastly improved after stopping Gleevec.
Cumulative Gleevec dosage estimated at 830 grams
Taking Gleevec 400mg an hour after my largest meal of the day helped eliminate the nausea that Gleevec is notorious for.
Trey's CML Blog - Stopping - The Odds - Stop Studies - Discussion Forum Cessation Study
Big PhRMA - Medicare Status - Social Security Status - Deficit/Debt
Advanced Member
Posted 10 October 2016 - 11:02 AM
I agree, Susan61. Wouldn't you like to see what you look like without the Gleevec Mr. Toad eyes? THE PERIORBITAL EDEMA GOES AWAY WITHOUT GLEEVEC - really!
Dx July 2009 on routine physical. WBC 94. Started Gleevec 400 mg Sept 2009. MMR at 2yrs. Side effects (malaise, depression/anxiety, fatigue, nausea, periorbital edema) never improved. Kidney issues developed because of Gleevec. Switched to Sprycel 70 mg in Aug 2011. Above side effects disappeared or improved. Have been MR3.5 - 4.5 ever since. Two untreated pleural effusions followed by one treated by stopping Sprycel Jan 2017. After 9 weeks, PCR showed loss of MMR; re-started Sprycel at 50 mg and in 3 months was back to <0.01% IS. Pleural effusion returned within a couple of months, same as before (moderate, left side only). Stopped Sprycel 50 mg for 12 weeks; pleural effusion resolved. At about a monthoff the drug, PCR was 0.03; at 11 weeks it was 2.06 - lost CCyR? Have returned to 50 mg Sprycel for 3 weeks, intending to reduce to 20 mg going forward.
Advanced Member
Posted 10 October 2016 - 05:14 PM
Hi, Susan61! Great to hear from you! I also agree on cutting dosage. I'm now down to 25 mg Sprycel. When I first talked to my doc about cutting dosage, he wasn't thrilled with the idea, but he is definitely now in agreement that the lowest dosage to maintain good results is the way to go. Talk with your doc about it.
Take care!
Marnie
Advanced Member
Posted 12 October 2016 - 12:17 PM
RE: Good side effects
What a coincidence...had the radio on and a commercial caught my ear. The woman wanted her prescriptions with no side effects. (Yeah, don't we all) Turns out there is some new DNA test that they do with a swab to the cheek. The result is finding the drug best suited with minimal side effects. Has anyone heard/seen a similar one? The commercial was Daunhauer Drugs (Owensboro, KY) part of Good Neighbor Pharmacy network. Glancing at their website, I couldn't seem to find it.
Sure would be nice if we could be easily matched with the TKI with the least amount of side effects to each of us. One day.....
DX 1/14; Sprycel 100 Mg, liver toxicity; Sprycel 80 Mg; down to 50 Mg for 5 months. Numbers going up. Back to 80 Mg 10/16 (with 50s slipped in to use up) BCR/ABL: .0047 12/15; .0302 4/16; .0528 8/16; .084 10/16; .045, 1/17 back up on 80 mg Sprycel; .006, 3/17; .016, 7/17; Shingles 8/17
Advanced Member
Posted 18 October 2016 - 10:18 AM
I like this one the best. I'm very happy to be less cancer-y than I was. Also, I'm much happier with my new oncologist as well. She actually listened to me, acknowledged that my side effect issues were caused by Sprycel, and said we'd work on them together. It was a breath of fresh air.
DX 3/30/2016 WBC 484.2 FISH 95.3
took Hydrea 3/30-4/11
taking Sprycel 100 mg since 4/5
10 day break from Sprycel for platelet count of 12 4/26-5/8
7/07/2016 1.47% (IS)
9/30/16 BMB PCR .1259 switched to new onc
12/30/16 PCR .1569
4/7/17 PCR .0904 MMR
7/14/17 PCR .0520
12/1/17 PCR .0148
Advanced Member
Posted 18 October 2016 - 09:30 PM
on the seach for new onco...looking for anybody who will listen and understands CML in Texas....suggestions?
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