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I broke my *&%#$! leg


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#1 JPD

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Posted 28 July 2016 - 08:59 PM

Soooo, I went tubing on a nice little lazy river with some friends.  Good time.  Toward the end, I spy a rope swing that looked safe enough, so I thought "so what if its been 20 years since you went off a rope swing, go for it!".  So, I wade/swim to the bank and climb up to take hold the rope.  But, shit, what to do with my Ray Bans?  I know, I think to myself - I will let go of the rope and then put my hand over my face like a scuba diver does his mask when entering the water.  I take hold of the rope and push off... well, the combination of my lack of grip strength, being a bit overweight, and my concern over my pricey sunglasses leads me to let go of the rope before I should have.

 

I land in about 3 feet of water with left leg extended.  I hear/feel a terrible POP and immediately reach down expecting to feel bones sticking out of my leg.  Luckily, that didnt happen.  But I did fracture my tibial plateau... which is the top of my tibia where it meets the knee.  

 

I'll be in a giant brace for 6-8 weeks, on crutches, in pain, and currently taking 7.5 Norco.

 

I don't know the interaction between my Tasigna and the Norco, but I absolutely can not bear the pain without something stronger than over the counter shit... at least for now.  The knee is still the size of a softball.  I am gonna give the pain killers a few more days and then ween myself off them.  I don't trust them and I know they arent good for my liver.  

 

As an aside, it sucks getting questioned at the ER (or the dentist or anywhere else) about medical history and having to let yet another person know that we are saddled with this damned cancer.  There always seems to be a pause, like "oh shit", when they hear you say that... Its depressing.  It sucks.  So does having a broken knee.  

 

Hope everyone else is doing better than me.  :(


January 15: .53%

April 15:       .78%

July 15:      1.1% - upped dosage to 400mg after this test

Oct 15:       .85%

December 15:  .28%

March 16: .29%

July 16: .34%

October 16: .11%

January 17: .081%

April 17: .055%

July 17: .135%

Oct 17: .008%


#2 rcase13

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Posted 29 July 2016 - 08:00 AM

Yikes! I wish you a fast recovery. Yea I have been avoiding the dentist for just that reason. I am so sorry this happened.

10/01/2014 100% Diagnosis (WBC 278k, Blasts 6%, Spleen extended 20cm)

01/02/2015 0.06% Tasigna 600mg
04/08/2015 0.01% Tasigna 600mg
07/01/2015 0.01% Tasigna 600mg
10/05/2015 0.02% Tasigna 600mg
01/04/2016 0.01% Tasigna 600mg
04/04/2016 PCRU Tasigna 600mg
07/18/2016 PCRU Tasigna 600mg
10/12/2016 PCRU Tasigna 600mg
01/09/2017 PCRU Tasigna 600mg
04/12/2017 PCRU Tasigna 600mg
10/16/2017 PCRU Tasigna 600mg
01/15/2018 PCRU Tasigna 600mg

 

Cancer Sucks!


#3 beno

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Posted 29 July 2016 - 08:43 AM

In the morning before I got the call to go to the ER because I had leukemia, my wife broke her foot.  That was a crazy day.  5:30 in the AM I was in the local ER with my wife and 5:30 PM I was in the ER in Iowa City being told my kidneys were failing.


DX 3/30/2016 WBC 484.2 FISH 95.3

took Hydrea 3/30-4/11

taking Sprycel 100 mg since 4/5

10 day break from Sprycel for platelet count of 12 4/26-5/8

7/07/2016 1.47% (IS)

9/30/16 BMB PCR .1259 switched to new onc

12/30/16 PCR .1569

4/7/17 PCR .0904 MMR

7/14/17 PCR .0520

12/1/17 PCR .0148


#4 CallMeLucky

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Posted 29 July 2016 - 10:32 AM

Sucks bro, but you have a good story to tell!

Seriously though, hope that recovers soon.  As for telling them about your history, after a while it becomes less of an issue because the longer you're around it goes from a look of "oh you poor thing" to "wow you're kicking ass"!


Date  -  Lab  -  Scale  -  Drug  -  Dosage MG  - PCR
2010/Jul -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 1.2%
2010/Oct -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.25%
2010/Dec -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.367%
2011/Mar -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.0081%
2011/Jun -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2011/Sep -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.00084%
2011/Dec -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Mar -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.004%
2012/Jun -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Sep -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Dec -  MSKCC  -  Non-IS  -  Sprycel  - 100 - 0%
2013/Jan -  Quest  -  IS  -  Sprycel  -  50-60-70  - 0%
2013/Mar -  Quest  -  IS  -  Sprycel  -  60-70  - 0%
2013/Apr -  CUMC  -  Non-IS  -  Sprycel  - 50 - 0.036%
2013/May -  CUMC  -  Non-IS  -  Sprycel  - 50 - 0.046%
2013/Jun -  Genoptix  -  IS  -  Sprycel  - 50 - 0.0239%
2013/Jul -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0192%
2013/Jul -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0034%
2013/Oct -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0054%
2014/Jan -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0093%
2014/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0.013%
2014/Apr -  Genoptix  -  IS  -  Sprycel  - 100 - 0.0048%
2014/Jul -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2014/Nov -  Genoptix  -  IS  -  Sprycel  - 100 - 0.047%
2014/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0.0228%
2016/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Dec - Genoptix  -  IS  -  Sprycel  -  100 - 0%
 

 


#5 tiredblood

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Posted 29 July 2016 - 12:23 PM

So sorry to hear that JPD. I'm glad the skin wasn't broken (if I read your post correctly)-less chance of infection.  Take good care of yourself and here is a cyber hug for you.

 

Man, I was going to have you sign Tiredblood on your cast for me, but glad you don't have to lug around one of those heavy things.



#6 jmoorhou

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Posted 29 July 2016 - 02:26 PM

I know exactly what you're talking about, I hate to go the ER, or dentist and have to tell them about CML.....at least your leg will heal..
Diagnosed 3/2014 WBC 28 Non detectable within 3 monthsGleevec 400 mg 5/2014 one hour after dinner really improves nausea300 mg 12/15/2016200 mg and 300 mg Gleevec 2/25/2017 (after 3 years on Gleevec) For last four months taking 300 mg per day. Last CMC showed liver enzymes elevated, went to a good Naturopath and he recommended 4 Tumeric, 10,000 mg Vitamen D, and 3 milk thistle (silymarin) daily. Also use One<p>Day Detox Dandeloin tea, and Nettle Tea and a slice of ginger every day...in two months liver tests were below normal.Janis

#7 acl

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Posted 29 July 2016 - 02:41 PM

Soooo, I went tubing on a nice little lazy river with some friends.  Good time.  Toward the end, I spy a rope swing that looked safe enough, so I thought "so what if its been 20 years since you went off a rope swing, go for it!".  So, I wade/swim to the bank and climb up to take hold the rope.  But, shit, what to do with my Ray Bans?  I know, I think to myself - I will let go of the rope and then put my hand over my face like a scuba diver does his mask when entering the water.  I take hold of the rope and push off... well, the combination of my lack of grip strength, being a bit overweight, and my concern over my pricey sunglasses leads me to let go of the rope before I should have.

 

I land in about 3 feet of water with left leg extended.  I hear/feel a terrible POP and immediately reach down expecting to feel bones sticking out of my leg.  Luckily, that didnt happen.  But I did fracture my tibial plateau... which is the top of my tibia where it meets the knee.  

 

I'll be in a giant brace for 6-8 weeks, on crutches, in pain, and currently taking 7.5 Norco.

 

I don't know the interaction between my Tasigna and the Norco, but I absolutely can not bear the pain without something stronger than over the counter shit... at least for now.  The knee is still the size of a softball.  I am gonna give the pain killers a few more days and then ween myself off them.  I don't trust them and I know they arent good for my liver.  

 

As an aside, it sucks getting questioned at the ER (or the dentist or anywhere else) about medical history and having to let yet another person know that we are saddled with this damned cancer.  There always seems to be a pause, like "oh shit", when they hear you say that... Its depressing.  It sucks.  So does having a broken knee.  

 

Hope everyone else is doing better than me.  :(

JPD I wish you a speedy recovery... Take good care of yourself!

 

acl


Diagnosed March 2014

Imatinib 400 mg. Summer 2014, Imatinib 300 mg.

 

% BCR-ABL

IS-NCN

 

06/01/16     0.18%

24/02/16     0.11%

23/03/16     0.13%

12/05/16     0.07%

13/07/16     0.17%

12/09/16     0.12%

21/19/16     0.15%

23/11/16     0.09%

20/12/16     0.11%

19/01/17     0.07%

21/02/17     0.07%

20/03/17     0.06%

20/04/17     0.06%

20/05/17     0.07%

20/06/17     0.06%

23/08/17     0.08%

22/12/17     0.04%

 

 

 

 


#8 Marnie

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Posted 29 July 2016 - 06:34 PM

Sorry to hear about your mishap, JPD.  If it makes you feel any better I am also in your club of "crap, that was really stupid."  I am recovering from a separated shoulder and torn ligaments in my hand from a little mishap with the throttle on my trials motorcycle.  It's supposed to be a slow speed sport, but I smashed head-on into a rock slab wall at full throttle.  That was in April (April Fool's Day, to be precise).  I'm finally recovered enough that I can finally do stuff again.  Or anyway, I WAS until last week.  I was digging cactus in the yard (only 3.9 more acres to go) and I threw out my back (S-I joint issues, this is the 5th time in 4 years).  I have been flat on my back for a week, when I'm not shuffling around the house using my computer chair for a walker.

 

I'm finally retired, in our newly built house in the middle of paradise and I can't kayak, ride motorcycle, or do  anything fun.  Arrghhhhh! 

 

Maybe we are related. . . not only do we both have the stupid leukemia gene, but we also have the stupid gene! 

 

(Your story did give me a great visual, by the way)

Marnie



#9 pammartin

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Posted 29 July 2016 - 07:20 PM

Marnie, I keep picturing you riding across the country. I have to adjust my image.  Any more bull snakes or cats that want to make friends?  Leave the cactus, you have to have some green on the top of that hill. 

 

JPD, I honestly thought I was the only one that tried to engage in a leisure activity only to end up beat up and or broken.  My latest/greatest is not nearly as horrible as yours. I just reached out to try to kill one of those huge spiders with an egg sack that probably held about 2 million eggs on my sliding door.  The steps only cover the door that opens.  It was 1 a.m. and after getting a drink he just made me mad by hanging there.  I grabbed a paper towel and stood on the side of the step to smash him into the glass.  I fell off the step, on the ground scrambling to get up and I was knees and elbows in the dirt and stone thinking I had ten more of them crawling on my back.

 

All I broke was my pride.  Tonight I am going out with a different tool.  This one will work.

 

Attached File  fire death.jpg   63.37KB   2 downloads



#10 Marnie

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Posted 29 July 2016 - 09:45 PM

Hi, Pam. . .two new bull snakes (one is 6 feet long, no kidding) and a herd of 9 prong horns that hang out in our back yard a couple days a week (we cheated. . .we bought a salt lick and put it in the yard). 

 

Our neighbor encountered a bear that knocked down her bird feeder, but we didn't see it.

 

I would tell you the rabbit story, but you would be horrified.



#11 Melanie

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Posted 30 July 2016 - 12:55 AM

Hope you're able to recover quickly and not in too much pain. Enjoyed your story telling though...so would have done the rope swing into the river too, so can't blame you for trying it. Praying all mends well and you keep your spirits up.
Dx - 05/2011; PCR: 15.04; Fish: 87% Slow responder due to pancytopenia. Current - Bosulif - Nov: 2012, Mar 2016 lowered to 300 mg. 07/16 back to 400 mg. Clinical trial drug, Promacta, Feb 2013, for low Platelets.
CyCR - Aug 2014, Positive for 1 chromosome Sep 2015. PCR: 12.77 in Oct, 2012 to 0.04 (MDA) in Mar, 2016. 4/2016 - 0.126 (Local lab (IS); 05/2016 - 0.195 (local); 6/2016 - 0.07 (MDA); 7/2016 - 0.03 (local) 9/13/2016 - 0.16 (MDA); 9/26/2016 - 0.31 (MDA); 11/2016 - 0.012 (local); 01/2017 - 0.24 (MDA); 04/2017 - 0.09 (MDA); Cytogenetics show der(1:7)(q10;p10)7 chromosome mutation. Repeat of Sep 2015. PCR - 6/2017- 0.035 (local); 10/2017- 0.02 (MDA)

#12 rcase13

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Posted 30 July 2016 - 09:30 PM

Oh heck yeah, I would have done the rope swing into the river. How can you turn that down?!?!

10/01/2014 100% Diagnosis (WBC 278k, Blasts 6%, Spleen extended 20cm)

01/02/2015 0.06% Tasigna 600mg
04/08/2015 0.01% Tasigna 600mg
07/01/2015 0.01% Tasigna 600mg
10/05/2015 0.02% Tasigna 600mg
01/04/2016 0.01% Tasigna 600mg
04/04/2016 PCRU Tasigna 600mg
07/18/2016 PCRU Tasigna 600mg
10/12/2016 PCRU Tasigna 600mg
01/09/2017 PCRU Tasigna 600mg
04/12/2017 PCRU Tasigna 600mg
10/16/2017 PCRU Tasigna 600mg
01/15/2018 PCRU Tasigna 600mg

 

Cancer Sucks!


#13 mark1963

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Posted 31 July 2016 - 08:41 AM

when i broke my leg in a motorcycle mishap the er doctor said with a bewildered look you have leukemia and you ride a motorcycle. to which i replied i'm not f@#$@# dead lady,. made things way better. told me to take advil.I said not supposed to take nsaids. so take tylenol. could have killed her at 3am the next morning.

 

mark

 



#14 rcase13

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Posted 31 July 2016 - 03:02 PM

Ha yep looking for a new motorcycle now.

Bought a fun car as well. I say live it while you can.

But maybe stop jumping into rivers... ;)

10/01/2014 100% Diagnosis (WBC 278k, Blasts 6%, Spleen extended 20cm)

01/02/2015 0.06% Tasigna 600mg
04/08/2015 0.01% Tasigna 600mg
07/01/2015 0.01% Tasigna 600mg
10/05/2015 0.02% Tasigna 600mg
01/04/2016 0.01% Tasigna 600mg
04/04/2016 PCRU Tasigna 600mg
07/18/2016 PCRU Tasigna 600mg
10/12/2016 PCRU Tasigna 600mg
01/09/2017 PCRU Tasigna 600mg
04/12/2017 PCRU Tasigna 600mg
10/16/2017 PCRU Tasigna 600mg
01/15/2018 PCRU Tasigna 600mg

 

Cancer Sucks!


#15 Frogiegirl

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Posted 31 July 2016 - 09:17 PM

Fun cars and motorcycles. ...and rope swings! !!!! I think an 1130p.m taco bell run is living on the edge. I'm feeling inferior. ...lol; )

Diagnosed Oct 2013 Started 600mg of Tasigna  on Nov 4th. Lowered dose a few months later to 300mg due to side affects stayed here declining PCR until March 2015 small jump from 0.0072 to 0.0083 scarred my doc into full dose of Tasigna again 600mg(been miserable since) but reached PCRU 06/15/2015(next test) and have been there ever since. Hoping to have another little one. I have the support of my doc to go off anytime, just scared to jump. might go two years PCRU but he said it wont make much of a difference. I just figured I could possibly go into a trial while preggers if I got the two years behind me.

Nov 8th 2017 went off Tasigna

Dec 1st PCRU off TKI

Jan 5th PCR Detected .0625

Feb 1st PCR Detected .7815

Added 8-6 grams Curcumin daily in Feb

March 3rd PCR Detected 3.2646 YIKES!

 stopped trying for baby after February reading. will start new TKI march 16th 2017 (Sprycel)

FYI I'm not done trying for my last little one.


#16 beno

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Posted 01 August 2016 - 08:08 AM

Fun cars and motorcycles. ...and rope swings! !!!! I think an 1130p.m taco bell run is living on the edge. I'm feeling inferior. ...lol; )

Eating Taco Bell is always an adventure.


DX 3/30/2016 WBC 484.2 FISH 95.3

took Hydrea 3/30-4/11

taking Sprycel 100 mg since 4/5

10 day break from Sprycel for platelet count of 12 4/26-5/8

7/07/2016 1.47% (IS)

9/30/16 BMB PCR .1259 switched to new onc

12/30/16 PCR .1569

4/7/17 PCR .0904 MMR

7/14/17 PCR .0520

12/1/17 PCR .0148


#17 pammartin

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Posted 01 August 2016 - 08:17 AM

Especially a half hour to an hour after the Taco Bell feast. If you are in public, hazmat is called to clean the restrooms.

#18 rcase13

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Posted 02 August 2016 - 11:58 AM

Gleevec and a Taco Bell feast. That can have an explosive ending...


10/01/2014 100% Diagnosis (WBC 278k, Blasts 6%, Spleen extended 20cm)

01/02/2015 0.06% Tasigna 600mg
04/08/2015 0.01% Tasigna 600mg
07/01/2015 0.01% Tasigna 600mg
10/05/2015 0.02% Tasigna 600mg
01/04/2016 0.01% Tasigna 600mg
04/04/2016 PCRU Tasigna 600mg
07/18/2016 PCRU Tasigna 600mg
10/12/2016 PCRU Tasigna 600mg
01/09/2017 PCRU Tasigna 600mg
04/12/2017 PCRU Tasigna 600mg
10/16/2017 PCRU Tasigna 600mg
01/15/2018 PCRU Tasigna 600mg

 

Cancer Sucks!


#19 kat73

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Posted 02 August 2016 - 01:05 PM

JPD - So sorry to hear of your accident!  I broke my ankle in three places in 2012 and spent 8 weeks basically in bed, since like you, I was only supposed to use crutches (no weight bearing) and old age plus CML fatigue made my trips up and down stairs pretty infrequent.  I got a lot of books read!  Pride sure doth goeth before a fall - mine was "stupid" too - I had just gotten a killer haircut and was striding along feeling like a Kate Moss model and walked right off a curb.  I sort of crumpled into a kind of failed curtsy and many kind people came up to help.  Once I could see that my foot was dangling and backwards, I tucked it out of sight of the public.  I remember a great deal of Dilaudid, which was sort of like too much alkeehol - life was bonny and all souls were soulmates for awhile and then. . . I dint feel so good.  Threw up and went to sleep.  Don't know about Norco.  Anyway, I was lucky that once it was casted it didn't hurt very much, and then in a week I had surgery and recasting and it never hurt again.  Yours will be a harder road, painwise I would guess.  Anyway, this too shall pass and you'll be good as new!  I, for one, completely understand about saving the sunglasses.  When you find that perfect pair, you'll sell your first-born child first . . .


Dx July 2009 on routine physical.  WBC 94.  Started Gleevec 400 mg Sept 2009.  MMR at 2yrs.  Side effects (malaise, depression/anxiety, fatigue, nausea, periorbital edema) never improved.  Kidney issues developed because of Gleevec.  Switched to Sprycel 70 mg in Aug 2011.  Above side effects disappeared or improved.  Have been MR3.5 - 4.5 ever since.  Two untreated pleural effusions followed by one treated by stopping Sprycel Jan 2017.  After 9 weeks, PCR showed loss of MMR; re-started Sprycel at 50 mg and in 3 months was back to <0.01% IS.  Pleural effusion returned within a couple of months, same as before (moderate, left side only).  Stopped Sprycel 50 mg for 12 weeks; pleural effusion resolved.  At about a monthoff the drug, PCR was 0.03; at 11 weeks it was 2.06 - lost CCyR? Have returned to 50 mg Sprycel for 3 weeks, intending to reduce to 20 mg going forward.





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