Hi all - I was diagnosed with CML on 3/2015 from a blood test - I was put in Sprycel- on 1/2016 I was switched to Tasigna because of the side effects of Sprycel- I have never reached MMR - my numbers go up slightly and then go down slightly but I have never been below .610 - I have never had a BMM in the over one year I have dealt with this disease - should I insist on one or am I just asking for something I don't need - thanks
CML and BMB
Started by
martap999
, May 25 2016 06:30 PM
2 replies to this topic
#2
scuba
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Posted 25 May 2016 - 08:11 PM
If you have never had a bone marrow aspiration (don't need a biopsy) you should have one. It will show you (and your doctor) the state of your bone marrow and whether there are other issues going on. Did you reach FISH = zero? i.e. CCyR ...
Caution - bone marrows are not fun, but get it done.
Diagnosed 11 May 2011 (100% FiSH, 155% PCR)
with b2a2 BCR-ABL fusion transcript coding for the 210kDa BCR-ABL protein
Sprycel: 20 mg per day - taken at lights out with Quercetin and/or Magnesium Taurate
6-8 grams Curcumin C3 complex.
2015 PCR: < 0.01% (M.D. Anderson scale)
2016 PCR: < 0.01% (M.D. Anderson scale)
March 2017 PCR: 0.01% (M.D. Anderson scale)
June 2017 PCR: "undetected"
September 2017 PCR: "undetected"
#3
Sneezy12
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Posted 25 May 2016 - 08:57 PM
Get a Bone Marrow Aspiration and Biopsy, and a new Oncologist who knows something about CML.
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