I suppose I should start by introducing myself. My name is John I am 28 years old living and working in Chicago. I was diagnosed about 6 months ago in October of 2015. I had not been to a doctor in years since I never really had any reason to go and eventually went for a checkup which led to my diagnosis. Being diagnosed has really driven my anxiety through the roof. I never really had anxiety prior to my diagnosis I was pretty laid back and lived a pretty stress free life. Now I spend hours on most days reading through statistics trying to convince myself that I will probably live a normal life span. I am on 100mg sprycel and have not had any real awful side affects, just some minor annoyances (muscle twitches, ect). I have been reading posts from this forum nearly every day since I was diagnosed but finnaly am creating my first post now. Today I got the results back of my six month PCR they were .639% IS. I was really hoping for it to come back .1XX% but I guess I was being a little too optimistic. I am feeling a bit of disappointment but still trying to stay positive. My three month PCR result was 1.2% which I was very excited about. My Six Month PCR still has me feeling in this place that my life is on pause. I was really hoping with the weather getting nice CML could take a backseat but my anxiety will probably get the best of me for the next few months till my next PCR. I am hopeful my Nine Month PCR will be less than .1% which would really help me feel more confident and would hopefully relieve the pause affect. I am although trying to be realistic now that this may not happen.
Diagnos PCR = 87%
3 Month PCR = 1.2%
6 Month PCR = 0.639%
I should note that I did have my six month PCR at 76 days instead of 90. Given this I estimate now that since I had a .28 log reduction in 76 days I would have had a .33 log reduction in 90 days. If my PCR continues to follow this trend downwards at the exact same rate I would not meet the Milestone of MMR at 1 year
Estimated 9 Month PCR = 0.26%
Estimated 12 Month PCR = 0.12%
Estimated 15 Month PCR = 0.06%
I know my estimations are just really a guess based on the trend of my PCR between 3 Months and 6 Month but I have yet to see anyone have an upward trend in rate of log reduction. Seems everyones rate of log reduction decreases over time or stays the same never increases except with dose increase.