I love that my retirement medical plan through Kaiser pays for my TKI with no doughnut hole, however I am disturbed how little some of the Oncologists know about CML and TKIs. Also I'm finding a culture where I, as a patient, am not encouraged to question or explain what I understand.
I was previously a patient at OHSU (a big teaching hospital and home of Dr. Drucker), where I was encouraged to be informed, treatments were always explained thoroughly, and I was able to attend groups and classes about CML and TKIs. It seems too difficult that at Kaiser I must research my own treatment and then somehow make it seem like it was my Oncologists' idea! I'm pretty shocked and discouraged that the Hematology/Oncology team doesn't seem to seek any current information! I guess I just need them to keep writing that prescription.
Is this common? What's your experience?