I had a Bone marrow transplant over 6 years ago to treat my CML. I am now 22 years old and still experiencing chronic GVHD.
The most frustrating manifestation has been my dry eyes. I'm completely unable to produce tears and I constantly have to use artificial tears, steroid eyedrops, and antihistamine drops. I've tried all the conventional treatments including restasis and even specially formulated cyclosporin products. NOTHING has helped.
After 6 years of practice, I've gotten pretty good at keeping myself comfortable but I'm curious as to whether or not anyone else has had this issue after their transplant? Or if anyone has had success in reversing their chronic GVHD problems?