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Is it dangerous to have a pet when we have CML?

CML leukemia pet

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#1 survenant

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Posted 26 January 2016 - 12:04 AM

''There are several factors behind the proliferation of diseases in humans that are caused by pets. One is an increase in the number of patients at risk of pet-associated diseases.  For healthy people, the risk is fairly low - not so for newborns, kids with leukemia, adults with cancer as well as organ transplant recipients of all ages. Several surveys have found that the general public and vulnerable patients are unaware of the health risks from pets.  One study found 77% of households that got a new pet following a diagnosis of cancer got a high-risk pet.''

 

Extract of Who let the dogs out? Pet therapy's hidden danger

 

 

See also Zootherapy and CML



#2 gerry

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Posted 26 January 2016 - 01:27 AM

First article talks about compromised immune systems, for most of us with CML that isn't an issue. 



#3 pammartin

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Posted 26 January 2016 - 07:51 PM

I have six dogs, a Russian tortoise, the random stray animal, a 20 year old son, and am a foster parent.  I went through the majority of my diagnosis, treatment, and finally undetectable status with almost all of the above in constant contact.  I would not have had it any other way.



#4 Trey

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Posted 26 January 2016 - 07:57 PM

Probably more hazardous to have children around.....



#5 pammartin

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Posted 26 January 2016 - 07:59 PM

What Trey said.....



#6 scuba

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Posted 26 January 2016 - 08:39 PM

I have 4 dogs (Doberman Pinschers), a couple of birds, hundreds of gallons of aquarium fish, Racoons (yep - live upstairs) and survived them all even when my Neutrophils were 0.1 ... 

 

I have a suspicion they helped keep me alive rather than be a threat. 

 

... p.s. and one wife.


Diagnosed 11 May 2011 (100% FiSH, 155% PCR)

with b2a2 BCR-ABL fusion transcript coding for the 210kDa BCR-ABL protein

 

Sprycel: 20 mg per day - taken at lights out with Quercetin and/or Magnesium Taurate

6-8 grams Curcumin C3 complex.

 

2015 PCR: < 0.01% (M.D. Anderson scale)

2016 PCR: < 0.01% (M.D. Anderson scale) 

March        2017 PCR:     0.01% (M.D. Anderson scale)

June          2017 PCR:     "undetected"

September 2017 PCR:     "undetected"


#7 Harper3994

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Posted 26 January 2016 - 08:53 PM

These posts really made my day. Thanks for making me laugh! They say laughter is the best medicine!

#8 CallMeLucky

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Posted 27 January 2016 - 12:27 AM

Dangerous? I don't think so, but if it's like my dog, it's a pain in the ass.

Assuming you have normal blood counts and immune system is not compromised it would be fine.
Date  -  Lab  -  Scale  -  Drug  -  Dosage MG  - PCR
2010/Jul -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 1.2%
2010/Oct -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.25%
2010/Dec -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.367%
2011/Mar -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.0081%
2011/Jun -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2011/Sep -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.00084%
2011/Dec -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Mar -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0.004%
2012/Jun -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Sep -  MSKCC  -  Non-IS  -  Gleevec  - 400 - 0%
2012/Dec -  MSKCC  -  Non-IS  -  Sprycel  - 100 - 0%
2013/Jan -  Quest  -  IS  -  Sprycel  -  50-60-70  - 0%
2013/Mar -  Quest  -  IS  -  Sprycel  -  60-70  - 0%
2013/Apr -  CUMC  -  Non-IS  -  Sprycel  - 50 - 0.036%
2013/May -  CUMC  -  Non-IS  -  Sprycel  - 50 - 0.046%
2013/Jun -  Genoptix  -  IS  -  Sprycel  - 50 - 0.0239%
2013/Jul -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0192%
2013/Jul -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0034%
2013/Oct -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0054%
2014/Jan -  Genoptix  -  IS  -  Sprycel  - 70 - 0.0093%
2014/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0.013%
2014/Apr -  Genoptix  -  IS  -  Sprycel  - 100 - 0.0048%
2014/Jul -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2014/Nov -  Genoptix  -  IS  -  Sprycel  - 100 - 0.047%
2014/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2015/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0.0228%
2016/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2016/Dec -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Mar -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Jun -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Sep -  Genoptix  -  IS  -  Sprycel  - 100 - 0%
2017/Dec - Genoptix  -  IS  -  Sprycel  -  100 - 0%
 

 


#9 kat73

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Posted 27 January 2016 - 11:54 AM

This may a stupid or obvious question, one that may have already been answered, but I still don't really understand how you know if you're immune-compromised or not.  If your absolute neutrophils number is within normal limits, is that the indicator?  Or do other tests show how your immune system is doing?  Surely it can't just be anecdotal: whether you "get sick a lot"??!!


Dx July 2009 on routine physical.  WBC 94.  Started Gleevec 400 mg Sept 2009.  MMR at 2yrs.  Side effects (malaise, depression/anxiety, fatigue, nausea, periorbital edema) never improved.  Kidney issues developed because of Gleevec.  Switched to Sprycel 70 mg in Aug 2011.  Above side effects disappeared or improved.  Have been MR3.5 - 4.5 ever since.  Two untreated pleural effusions followed by one treated by stopping Sprycel Jan 2017.  After 9 weeks, PCR showed loss of MMR; re-started Sprycel at 50 mg and in 3 months was back to <0.01% IS.  Pleural effusion returned within a couple of months, same as before (moderate, left side only).  Stopped Sprycel 50 mg for 12 weeks; pleural effusion resolved.  At about a monthoff the drug, PCR was 0.03; at 11 weeks it was 2.06 - lost CCyR? Have returned to 50 mg Sprycel for 3 weeks, intending to reduce to 20 mg going forward.


#10 Trey

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Posted 27 January 2016 - 09:09 PM

Immune compromised is a life threatening status.  The body is essentially defenseless.  We are not that.  Then there are various stages of what might be called immune-suppressed.  That can happen to people with and without CML, sometimes referred to as being "run down" in otherwise healthy people.  That is a continuum with many levels.  But if your body makes the cells needed when they are needed, the immune system works just fine, which is what happens for almost all of us with CML even if our average counts are under normal limits. 

 

But I still would not lick the shoe bottoms of small children.  That is called being mentally compromised.  Just sayin'



#11 Terran

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Posted 27 January 2016 - 09:43 PM

Shoe bottoms might be the cleanest part of a small child. Still, I fondly remember toddler kisses and can't wait for grand children. My oldest son has just returned to his wife after a 6 months deployment. I'm crossing my fingers.

#12 Terran

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Posted 27 January 2016 - 09:45 PM

And if I didn't have two dogs and a cat keeping me company last February when I was bedridden with my new diagnosis, I don't know......

#13 Anti-Matters

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Posted 27 January 2016 - 10:32 PM

Shoe bottoms are fine. It's the rest of them that gets really disgusting.



#14 kat73

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Posted 28 January 2016 - 01:19 PM

Oh Trey, you've really opened the diaper now! 

 

For me, the real lollapaloozas of illnesses that are lodged in my memory - the legendary, mythical, avalanche and tsunami sized sicknesses, the Top Ten shall we say were ALL SMALL CHILD CAUSED - what a vector!  Grandchildren!  Oy!  Wash your hands if you touch them or anything they own, wear, or touch and for Lord's sake, NEVER KISS THEM!!!!! If they need their noses wiped, nudge them (use your knuckle) toward their parents, DON'T DO IT YOURSELF!  You will have to burn the kleenex and dip your hands in Bentadyne . . .


Dx July 2009 on routine physical.  WBC 94.  Started Gleevec 400 mg Sept 2009.  MMR at 2yrs.  Side effects (malaise, depression/anxiety, fatigue, nausea, periorbital edema) never improved.  Kidney issues developed because of Gleevec.  Switched to Sprycel 70 mg in Aug 2011.  Above side effects disappeared or improved.  Have been MR3.5 - 4.5 ever since.  Two untreated pleural effusions followed by one treated by stopping Sprycel Jan 2017.  After 9 weeks, PCR showed loss of MMR; re-started Sprycel at 50 mg and in 3 months was back to <0.01% IS.  Pleural effusion returned within a couple of months, same as before (moderate, left side only).  Stopped Sprycel 50 mg for 12 weeks; pleural effusion resolved.  At about a monthoff the drug, PCR was 0.03; at 11 weeks it was 2.06 - lost CCyR? Have returned to 50 mg Sprycel for 3 weeks, intending to reduce to 20 mg going forward.


#15 hannibellemo

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Posted 28 January 2016 - 02:40 PM

This is an excellent article on why pets are so important for healing and how some very important hospitals are making it possible for pet visits ro improve the lives and outlooks of their patients.

 

http://www.akc.org/n...rom-their-pets/


Pat

 

"You can't change the direction of the wind but you can adjust your sails."

DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>


#16 pammartin

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Posted 28 January 2016 - 07:17 PM

My dogs are cleaner than my son will ever be.  And have less germs.



#17 RayT

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Posted 30 January 2016 - 01:41 PM

The only time my dogs have been dangerous is when I tried to pet my food-possessive 100lb Akita, not realizing he had an empty tuna can under his paws.

#18 Noodle

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Posted 30 January 2016 - 03:36 PM

I Went through 10 months of agreesive chemo to cure my AML with two amazing golden doodle by my side. Actual had a litter of puppies in the midst while being nuetrapedic. No issues.

Blessings,

Julie

DXD 22 March 2013 AML M4 Inversion 16 Negative FLT 3 & CKIT

Induction 7+3 & 4 Rounds of HiDAC, lowered dose due to slow count recovery.

Qrtrly PCR & Phlebotomy for high iron stores

Almighty God is my redeemer and HEALER!!@

Psalm 103:1-5 — "Bless the Lord, O my soul, and forget not all His benefits.... who heals all your diseases..


Mark 10:27 (New Living Translation) — Jesus looked at them intently and said, "Humanly speaking, it is impossible. But not with God. Everything is possible with God."


#19 Trey

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Posted 30 January 2016 - 11:39 PM

Actual had a litter of puppies in the midst while being nuetrapedic.

 

That must have hurt.  I can't imagine the nursing.


Edited by Trey, 30 January 2016 - 11:40 PM.


#20 kat73

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Posted 31 January 2016 - 01:15 PM

The only time my dogs have been dangerous is when I tried to pet my food-possessive 100lb Akita, not realizing he had an empty tuna can under his paws.

 

RayT - That's how I got it, too, from my 112lb Berner.  He got an empty tuna foil packet out of the recycling and I managed to get it away from him with a broom, which made him mad, and when I tossed him a Milkbone dog biscuit, he went for it, changed his mind and turned around and went for my arm instead.  I found out later from a dog behaviorist we hired that tuna is the #1 treat from a dog's standpoint - a "high value treat" and that's why he rejected the boring old dry dog biscuit.  I got stitches at an urgent care facility and, even though I went home with antibiotics, it was infected the next day.  I spent 11 days in the hospital with IV antibiotics and a WoundVac (as gross as it sounds) before a debridement and washout to get the last infection.  I've had two fat grafts, but it still looks bad.  And yes, the dog is still with us!  Thanks to the behaviorist.  WE changed all OUR behavior!  What happened to you?


Dx July 2009 on routine physical.  WBC 94.  Started Gleevec 400 mg Sept 2009.  MMR at 2yrs.  Side effects (malaise, depression/anxiety, fatigue, nausea, periorbital edema) never improved.  Kidney issues developed because of Gleevec.  Switched to Sprycel 70 mg in Aug 2011.  Above side effects disappeared or improved.  Have been MR3.5 - 4.5 ever since.  Two untreated pleural effusions followed by one treated by stopping Sprycel Jan 2017.  After 9 weeks, PCR showed loss of MMR; re-started Sprycel at 50 mg and in 3 months was back to <0.01% IS.  Pleural effusion returned within a couple of months, same as before (moderate, left side only).  Stopped Sprycel 50 mg for 12 weeks; pleural effusion resolved.  At about a monthoff the drug, PCR was 0.03; at 11 weeks it was 2.06 - lost CCyR? Have returned to 50 mg Sprycel for 3 weeks, intending to reduce to 20 mg going forward.






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