Just wondering if we are going to lose this tremendously valuable resource when they switch to the horrible new facebook format.

Will these boards at least be archived? Lots of valuable info here.
#1
Posted 19 January 2016 - 11:53 PM
DX 6/2013
Sprycel 100mg
CCR 3/2015
MMR 2/2016
<.01 IS 10/16 hopkins didn't report actual percentage
.007 IS 6/2017
<.01 12/2017 again no actual percentage but didn't see the report myself yet
#2
Posted 20 January 2016 - 12:39 AM
#3
Posted 20 January 2016 - 10:22 AM
Their plan is to only archive a couple years of data. Last time it was not interactive with the new discussion board, so likely the same.
#4
Posted 20 January 2016 - 10:59 AM
They will move over three years of data, not two. I suggested they at least move over five years at a minimum
Diagnosed 11 May 2011 (100% FiSH, 155% PCR)
with b2a2 BCR-ABL fusion transcript coding for the 210kDa BCR-ABL protein
Sprycel: 20 mg per day - taken at lights out with Quercetin and/or Magnesium Taurate
6-8 grams Curcumin C3 complex.
2015 PCR: < 0.01% (M.D. Anderson scale)
2016 PCR: < 0.01% (M.D. Anderson scale)
March 2017 PCR: 0.01% (M.D. Anderson scale)
June 2017 PCR: "undetected"
September 2017 PCR: "undetected"
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