50 replies to this topic

[survenant]

See CML causes

[jmoorhou]

I retired and laid in the sun everyday for two years (I live in CA), and I think the depleted ozone layer caused radiation to get through to me.

 

I think Scuba said that's probably not possible, so now I think it was benzene in drinking water, I used to buy three forms of water and never drank tap, then I retired and wanted to save money so all I do is use a Britta filter...

[CallMeLucky]

The Devil?

[hannibellemo]

I don't even go down that road.

[Cool Hand Leuk]

Low D3 levels and Radon Gas exposure

[scuba]

I retired and laid in the sun everyday for two years (I live in CA), and I think the depleted ozone layer caused radiation to get through to me.

 

The sun's radiation is not sufficient to get through the skin to the bones where blood cells are made. Skin cancer, perhaps, but not blood cancer due to sun radiation.

 

X-rays from cat scan machines, however, produce a lot of penetrating x-rays that will affect internal organs including bone marrow.

 

http://www.ratical.o...yInSunComp.html

[SusanL]

what about 36 radiation treatments for breast cancer???

[SunNsand]

what about 36 radiation treatments for breast cancer???

I've seen a few CML'ers comment in various groups that they previously had breast cancer.

[kat73]

Yup.  I had a summer of daily radiation - 36 sounds about right.

[Harper3994]

I had Mammo-Site radiation for breast cancer....targeted radiation twice a day for 5 days. My blood work was fine before I had that.

[Gail's]

My story include four (for sure, maybe more) abdominal ct scans in the two years prior to diagnosis. In childhood I had TB so got weekly chest X-rays for a year then monthly for another year. Wish I knew the levels of radioactive exposure I had in the 50s due to releases at Hanford where I grew up. This exposure is certainly suspicious for causing my cancer.

[xGunner]

I blame the lack of social media when I was growing up.

[scuba]

I blame the lack of social media when I was growing up.

 

I blame sunscreen.

[Terran]

I am waiting for the news to break that the chemicals in sunscreen cause cancer. But leukemia is just bad luck, or benzene.

[MarieC]

Harper3994, I also had the mammo-site radiation for 5 days  twice a day. I also blame that for my CML.  For some who do not know mammo-site procedure, targeted radiation, it is a breast cancer procedure that some women who have a small cancerous breast tumor (I call it a tumor), can opt to have after the cancer is removed. The surgeon then at the same time inserts a balloon into the space that the cancer was removed.  In a few days you then go to a cancer oncologist for radiation, they insert a tubing into this balloon, and depending on how the oncologist sets up for your  body system, could be for 3 minutes or 5 minutes two times a day for 5 days. The radiation goes directly  into the  balloon space where your cancer was removed, rather than the whole surface  breast/chest area. The reasoning I opted and was a candidate for this radiation procedure, was because my cancer was small and I did not want to go every day for 30 or so days for treatment.  Some have this procedure because they work, and it is an inconvenience to go daily  or whatever their decision.

 

I then went to a follow up onc. who took my blood readings every 2 months. I had yearly mammograms  for 2 yrs everything was negative and  blood work fine.  I then moved to a different state, this onc. never took my blood test, he just would say  yrly mammos are fine.  I never questioned him.  So for 5 yrs from July 2008 to July 2013 I had all negative Mammograms.  In August of 2013 I could not shake a cold, finely went to a Dr. got bloodwork and she called me and said something is wrong, go and get another  blood test, I did, and from that, is when my Primary sent me to a cancer center, and was diagnosed with CML. Also from a BMB dx..  

Went on 400  gleevec, with all the same side effects as others.  So from aug of 2014 I have been  0.000% .   I do have low RBC,Hmg.low .Hemocrit, low  High MCV, and High MCH.   Onc. lowered me to 300 gleevec a day, and that is where I am today, and staying the same as of Dec. 2015. I do take vitamins, C, D,B Iron and anything else to help this anemia, just holding steady.  Go every 3 months for check ups.

 

No one will ever convince me this cml was not from radiation.  also I fault myself for not insisting on bloodwork with this  new onc. even tho I did have blood work once a yr from  my primary Dr.  in this new state.   I did not need this  in my later yrs, thought I would relax travel do all the things your golden yrs are supposed to represent, Things don't always work out like we want them to, can't complain tho, I am still here, enjoying each day the best I can, and somedays are a bit*h to get through, but "pluggin" on.

 

I read this forum everyday, do not participate much but get the best advice each and everyone offers.  Thanks for being there for all of us with the advice and "humor".

Marie

[Cool Hand Leuk]

anyone for a colonoscopy with a less then perfectly clean probe? Not looking for volunteers , just proposing what might be the cause.

[r06ue1]

I truly have no idea what could have caused mine, never really was exposed to radiation other than airport and dental x-rays and those were once a year at most.  

 

I did hear that microwave ovens can cause cancer if they are old and leaking (seals around the doors).  Don't know if that is true or not.  Benzene in our water, radon in the house (thought this only caused lung cancer though), just don't know.

[snowbear]

I just blame life and luck of the draw.

[LAC1223]

I had radiation for 5 days a week for 6 weeks for a brain tumor - so that would get my vote.  That or just plain 'ole if it weren't for bad luck - well, you know the rest.

[tiredblood]

I blame my genes. 9 went and hooked up with 22 or vice versa.