Most cancer cases due to lifestyle choices, not 'bad luck,' study suggests | Fox News | http://fxn.ws/1RqTejd
the only question now is: "where did you go wrong?"
where did you go wrong?
Started by
Buzzm1
, Dec 18 2015 04:35 AM
8 replies to this topic
#1
Buzzm1
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Posted 18 December 2015 - 04:35 AM
For the benefit of yourself and others please add your CML history into your Signature
02/2010 Gleevec 400mg
2011 Two weakly positives, PCRU, weakly positive
2012 PCRU, PCRU, PCRU, PCRU
2013 PCRU, PCRU, PCRU, weakly positive
2014 PCRU, PCRU, PCRU, PCRU (12/07 began dose reduction w/each continuing PCRU)
2015 300, 250, 200, 150
2016 100, 50/100, 100, 10/17 TFR
2017 01/17 TFR, 04/18 TFR, 07/18 TFR 0.0012, 08/29 TFR 0.001, 10/17 TFR 0.000
2018 01/16 TFR 0.0004 ... next quarterly PCR 04/17
At the earliest opportunity, and whenever possible, lower your TKI dosage; TKIs are toxic drugs and the less we take longterm the better off we are going to be ... this is especially true for older adults.
In hindsight I should have started my dosage reduction two years earlier; it might have helped minimize some of the longterm cumulative toxic effects of TKIs that I am beset with.
longterm side-effects Peripheral Artery Disease - legs (it's a bitch); continuing shoulder problems, right elbow inflammation. GFR and creatinine vastly improved after stopping Gleevec.
Cumulative Gleevec dosage estimated at 830 grams
Taking Gleevec 400mg an hour after my largest meal of the day helped eliminate the nausea that Gleevec is notorious for.
Trey's CML Blog - Stopping - The Odds - Stop Studies - Discussion Forum Cessation Study
Big PhRMA - Medicare Status - Social Security Status - Deficit/Debt
#2
Billie Murawski
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Posted 18 December 2015 - 04:51 AM
So if we wear rubber clothes all our lives and don't breathe we will never get cancer. No wonder they want that station off the air. All I did wrong was to be born.
#3
hannibellemo
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Posted 18 December 2015 - 07:18 AM
The key word here for us is "most". So true, Billie! 
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
#4
Judithb
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Posted 18 December 2015 - 09:50 AM
I for one will not buy in to the "blame the victim " mentality. Not that I think of myself as a victim. Our cancer, CML, is not related to diet, weight, or smoking or any lifestyle choices, except perhaps working at a nuclear site or being otherwise exposed to radiation. In my case it may be correlated to my working in the WTC disaster site at the time of the Towers' collapse and for years thereafter, but even that is speculation.
Sometimes there is no answer. But I do regret that our government was not more forthcoming about the air quality there. Many of my friends and co-workers, esp those who worked "on the Pile," are much sicker than I and some are dead from various forms of cancer.
#5
dede5
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Posted 18 December 2015 - 10:17 AM
None of the exposure theories apply to me, unless there was something I wasn't aware of. I will always believe mine was brought on by the ridiculously high level of stress I carried for a few years before, and up to, dx. I was shocked to learn I have cancer, but not really surprised, because I know what I was dealing with. I know those with more medical knowledge may disagree with my theory, and I have no proof to back it up, but it's mine and I will stand by it.
Dx: 01 March 2011
Sprycel 100 mg per day since dx
MMR: July 2013
numerous side effects
Thankful for the gift of each new day, and try to live it to the fullest
#6
Trey
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Posted 18 December 2015 - 10:34 PM
Most cancers are the result of repeatedly frying some tissue. Smoking, sun exposure, inhaling carcinogens, etc. We are not among the "most" group. We did not do anything wrong.
#7
rcase13
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Posted 19 December 2015 - 12:01 AM
If I didn't do anything wrong then why am I being punished?
10/01/2014 100% Diagnosis (WBC 278k, Blasts 6%, Spleen extended 20cm)
01/02/2015 0.06% Tasigna 600mg
04/08/2015 0.01% Tasigna 600mg
07/01/2015 0.01% Tasigna 600mg
10/05/2015 0.02% Tasigna 600mg
01/04/2016 0.01% Tasigna 600mg
04/04/2016 PCRU Tasigna 600mg
07/18/2016 PCRU Tasigna 600mg
10/12/2016 PCRU Tasigna 600mg
01/09/2017 PCRU Tasigna 600mg
04/12/2017 PCRU Tasigna 600mg
10/16/2017 PCRU Tasigna 600mg
01/15/2018 PCRU Tasigna 600mg
Cancer Sucks!
#8
chriskuo
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Posted 19 December 2015 - 02:25 AM
Lung cancer has dropped dramatically as fewer people smoked.
CML affects a minute portion of the population and the total number of cases in the US increases pretty much in tandem with population growth. No luck so far in finding any correlation to environmental or lifestyle choices, except in extreme cases like Hiroshima and Nagasaki.
#9
Buzzm1
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Posted 19 December 2015 - 11:54 AM
I can't argue with the premise of the article; my life has had it's share of what could be termed contributing factors. The same can be said for my environmentally-induced Pop Warner C4-T1 injury. But I look good.
For the benefit of yourself and others please add your CML history into your Signature
02/2010 Gleevec 400mg
2011 Two weakly positives, PCRU, weakly positive
2012 PCRU, PCRU, PCRU, PCRU
2013 PCRU, PCRU, PCRU, weakly positive
2014 PCRU, PCRU, PCRU, PCRU (12/07 began dose reduction w/each continuing PCRU)
2015 300, 250, 200, 150
2016 100, 50/100, 100, 10/17 TFR
2017 01/17 TFR, 04/18 TFR, 07/18 TFR 0.0012, 08/29 TFR 0.001, 10/17 TFR 0.000
2018 01/16 TFR 0.0004 ... next quarterly PCR 04/17
At the earliest opportunity, and whenever possible, lower your TKI dosage; TKIs are toxic drugs and the less we take longterm the better off we are going to be ... this is especially true for older adults.
In hindsight I should have started my dosage reduction two years earlier; it might have helped minimize some of the longterm cumulative toxic effects of TKIs that I am beset with.
longterm side-effects Peripheral Artery Disease - legs (it's a bitch); continuing shoulder problems, right elbow inflammation. GFR and creatinine vastly improved after stopping Gleevec.
Cumulative Gleevec dosage estimated at 830 grams
Taking Gleevec 400mg an hour after my largest meal of the day helped eliminate the nausea that Gleevec is notorious for.
Trey's CML Blog - Stopping - The Odds - Stop Studies - Discussion Forum Cessation Study
Big PhRMA - Medicare Status - Social Security Status - Deficit/Debt
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