Quote "My CML has been under control for almost a decade now so it is no longer much of an issue to me personally, but I find I cannot neglect giving back to the new people who come along. I have learned so much that it would be a waste to withhold my hard-gained information from those who desperately seek answers."
This attitude merits praise.
helpful
Started by
missjoy
, Dec 15 2015 11:13 AM
10 replies to this topic
#2
hannibellemo
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Posted 15 December 2015 - 12:10 PM
What am I missing here? Why would Trey leave this forum?
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
#3
CML2012
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Posted 15 December 2015 - 07:17 PM
I agree. I do not post much but Trey has been great when I needed help.
Diagnosed CML December 2012
Gleevec 400 mg
PCR 53%, 41%, 1.69%, 5.63% (Mutation test negative) September 2013
Sprycel 100 mg
PCR 1.1%, 0.2%, 0.2%, 0.6%, .09%, .06%, PCRU June 2015, PCRU Sept 2015, PCRU Dec 2015, 0.042% Mar 2016, 0.122% April 2016, 0.19% June 2016, 0.176% July 2016, .052% Sept 2016, .031% Nov 2016
Diagnosed Basel Skin Cancer December 2012, October 2014 (All cancer removed)
Diagnosed Melanoma April 2015 (All cancer removed)
Gleevec 400 mg
PCR 53%, 41%, 1.69%, 5.63% (Mutation test negative) September 2013
Sprycel 100 mg
PCR 1.1%, 0.2%, 0.2%, 0.6%, .09%, .06%, PCRU June 2015, PCRU Sept 2015, PCRU Dec 2015, 0.042% Mar 2016, 0.122% April 2016, 0.19% June 2016, 0.176% July 2016, .052% Sept 2016, .031% Nov 2016
Diagnosed Basel Skin Cancer December 2012, October 2014 (All cancer removed)
Diagnosed Melanoma April 2015 (All cancer removed)
#4
Trey
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Posted 15 December 2015 - 10:49 PM
I got the message -- I actually have a life outside of this forum.
Your son is absolutely fine. Don't worry so much about each little bump.
Edited by Trey, 16 December 2015 - 10:51 PM.
#5
Antilogical
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Posted 15 December 2015 - 11:02 PM
Might be an interesting thread - Life Outside of This Forum.
Dx: Sudden severe anemia detected 07/2011, followed by WBC spike. CML Dx 02/2012.
Rx: 03/2012-Gleevec400. Reduced 02/2013 to Gleevec300 due to side effects (low blood counts).
Response: PCR-Und within 7 mo. on G400. Maintained MMR4-MMR4.5 on G300. PCR-Und since 02/2016.
#6
Busa
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Posted 15 December 2015 - 11:57 PM
Antilogical, on 15 Dec 2015 - 9:02 PM, said:Might be an interesting thread - Life Outside of This Forum.
OK, I'll start:
I went out and rode my motorcycle today!!!! Woo Hoo!!
#7
Marnie
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Posted 16 December 2015 - 12:29 PM
I'm jealous, Busa! My bikes are tucked snuggly into the garage. I can't complain too much, though. . .I went snowboarding, then came home and slapped on the cross-country skis for a few loops around the track I laid down. Today my legs hurt.
#8
hannibellemo
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Posted 16 December 2015 - 07:34 PM
At any rate, Trey, glad you haven't left the forum! 
So, about your life outside this forum...do share as I find I am living more and more vicariously through others!
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
#9
Trey
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Posted 16 December 2015 - 10:32 PM
Toured the Texas Governor's mansion yesterday. All decked out for Christmas. Then went to the Texas State Capitol building to walk around. After that I ate goat in curry sauce at an Indian restaurant served by two hippie girls who never made it out of the 70's. Sky was so blue. Sun was so bright. Day was so calm.
Then I walked past a moose and buffalo in the park. A girl on a BMW motorcycle, with a girl from Belize on the back, blew me a kiss. Herodotus the squirrel brought me some nuts, but they were still attached. A guy in a Shakespeare be-feathered hat asked me for the time, and I simply replied: "It is High Noon." He said, "Odd, I thought it was Midnight in Summer." I said it must be a dream. So then I woke up.
Must have been the curry.
#10
hannibellemo
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Posted 17 December 2015 - 10:13 AM
I have got to get out more; nothing like that has ever happened to me. Merry Christmas (although Merry Chrismoose might be more appropriate)! 
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
#11
Marnie
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Posted 17 December 2015 - 02:48 PM
No moose at the new house, but check out the deer that come through the yard every other day to eat my flowers. . .
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