
Dream back to the sport but with a major obstacle
#1
Posted 05 November 2015 - 07:03 PM
#2
Posted 07 November 2015 - 08:30 PM
FISH 92%
BMB 9:22 translocation
1/19/15 began 400 mg gleevec
1/22/15 bcr 37.2 IS
2/6/15 bcr 12.5 IS
3/26/15 bcr 10.3 IS
6/29/15 bcr 7.5 IS
9/24/15 bcr 0.8 IS
1/4/16 bcr 0.3 IS
Started 100 mg dasatinib, mutation analysis negative
4/20/16 bcr 0.03 IS
8/8/16 bcr 0.007 IS
12/6/16 bcr 0.002 IS
Lowered dasatinib to 70 mg
4/10/17 bcr 0.001 IS
Lowered dasatinib to 50 mg
7/5/17 bcr 0.004 IS
8/10/17 bcr 0.001. Stopped TKI in prep for September surgery.
9/10/17 bcr 0.006
10/10/17 bcr 0.088
#3
Posted 08 November 2015 - 11:39 PM
Magnesium is excellent - it has to be a fair bit before you'll notice though. I also take calcium phosphate capsules, as I have had phosphate loss show up on my CBCs, and the calcium helps with my cramping as well. Make sure you have enough potassium too, you can just get those re-hydrating drink sachet things from the pharmacy.
Scuba uses magnesium taureate from memory - I tried after his recommendation, and I can also recommend this
Diagnosed 9 June 2011, Glivec 400mg June 2011-July 2017, Tasigna 600mg July 2017-present (switched due to intolerable side effects, and desire for future cessation attempt).
Commenced monthly testing when MR4.0 lost during 2012.
2017: <0.01, <0.01, 0.005 (200mg Glivec, Adelaide) <0.01, 0.001 (new test sensitivity)
2016: <0.01, <0.01, PCRU, 0.002 (Adelaide)
2015: <0.01, <0.01, <0.01, 0.013
2014: PCRU, <0.01, <0.01, <0.01, <0.01
2013: 0.01, 0.014, 0.016, 0.026, 0.041, <0.01, <0.01
2012: <0.01, <0.01, 0.013, 0.032, 0.021
2011: 38.00, 12.00, 0.14
#4
Posted 09 November 2015 - 09:44 AM
TKI's are known to deplete the body's store of Magnesium. When I had muscle cramps develop, my Oncologist suggested 250 mg "Magnesium" per day to allevieate the cramping. It worked almost instantly. Further reading on Magnesium helped me tune my use of magnesium supplements to favor some over others:
https://drnibber.com...s-of-magnesium/
I take 250 mg Magnesium Taurate every day (best for the heart) - 125mg in the morning and 125 mg just before retiring. I will also take an additional 250mg of Magnesium Citrate when I am exercising more intensely (springing and other high intensity workouts) or just feel a bit more achy after working out. Magnesium Oxide should be avoided. It doesn't absorb well and will mostly contribute to loose stools.
It is difficult to overdose on Magnesium - however a sure sign you are taking too much is when you find things loosening up too much in the bathroom. That's when you know to cut back. A heart patient friend of mine takes 1,000 mg of Magnesium a day. For me that is too much.
Magnesium is outstanding for better and deeper sleep:
http://drhyman.com/b...eral-available/
And Magnesium helps the heart's rhythm:
https://umm.edu/heal...ement/magnesium
People who maintain healthy magnesium levels have a 40% lower risk of fatal heart attack. Mg is vital for heart rhythm and electrical function.
Diagnosed 11 May 2011 (100% FiSH, 155% PCR)
with b2a2 BCR-ABL fusion transcript coding for the 210kDa BCR-ABL protein
Sprycel: 20 mg per day - taken at lights out with Quercetin and/or Magnesium Taurate
6-8 grams Curcumin C3 complex.
2015 PCR: < 0.01% (M.D. Anderson scale)
2016 PCR: < 0.01% (M.D. Anderson scale)
March 2017 PCR: 0.01% (M.D. Anderson scale)
June 2017 PCR: "undetected"
September 2017 PCR: "undetected"
#5
Posted 09 November 2015 - 10:01 AM
#6
Posted 02 December 2015 - 04:14 PM
Magnesium supplements help the cramping muscles a lot. I had very painful cramps on imatinib until I learned from this forum to try magnesium. You can find it at a health food store or pharmacy. Certain types of magnesium work best. Scuba knows more about it. I got some pretty generic capsules that are called magnesium complex.
Magnesium is excellent - it has to be a fair bit before you'll notice though. I also take calcium phosphate capsules, as I have had phosphate loss show up on my CBCs, and the calcium helps with my cramping as well. Make sure you have enough potassium too, you can just get those re-hydrating drink sachet things from the pharmacy.
Scuba uses magnesium taureate from memory - I tried after his recommendation, and I can also recommend this
TKI's are known to deplete the body's store of Magnesium. When I had muscle cramps develop, my Oncologist suggested 250 mg "Magnesium" per day to allevieate the cramping. It worked almost instantly. Further reading on Magnesium helped me tune my use of magnesium supplements to favor some over others:
https://drnibber.com...s-of-magnesium/
I take 250 mg Magnesium Taurate every day (best for the heart) - 125mg in the morning and 125 mg just before retiring. I will also take an additional 250mg of Magnesium Citrate when I am exercising more intensely (springing and other high intensity workouts) or just feel a bit more achy after working out. Magnesium Oxide should be avoided. It doesn't absorb well and will mostly contribute to loose stools.
It is difficult to overdose on Magnesium - however a sure sign you are taking too much is when you find things loosening up too much in the bathroom. That's when you know to cut back. A heart patient friend of mine takes 1,000 mg of Magnesium a day. For me that is too much.
Magnesium is outstanding for better and deeper sleep:
http://drhyman.com/b...eral-available/
And Magnesium helps the heart's rhythm:
https://umm.edu/heal...ement/magnesium
People who maintain healthy magnesium levels have a 40% lower risk of fatal heart attack. Mg is vital for heart rhythm and electrical function.
#7
Posted 02 December 2015 - 04:14 PM
I don't know where you are cramping, but I get mine in my calves when playing tennis. I use a bodyhelix.com sleeve on both my calves when exercising and they do wonders. They have them for other areas of the body as well.
#8
Posted 03 December 2015 - 12:36 PM
FISH 92%
BMB 9:22 translocation
1/19/15 began 400 mg gleevec
1/22/15 bcr 37.2 IS
2/6/15 bcr 12.5 IS
3/26/15 bcr 10.3 IS
6/29/15 bcr 7.5 IS
9/24/15 bcr 0.8 IS
1/4/16 bcr 0.3 IS
Started 100 mg dasatinib, mutation analysis negative
4/20/16 bcr 0.03 IS
8/8/16 bcr 0.007 IS
12/6/16 bcr 0.002 IS
Lowered dasatinib to 70 mg
4/10/17 bcr 0.001 IS
Lowered dasatinib to 50 mg
7/5/17 bcr 0.004 IS
8/10/17 bcr 0.001. Stopped TKI in prep for September surgery.
9/10/17 bcr 0.006
10/10/17 bcr 0.088
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