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#1 jmoorhou

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Posted 03 November 2015 - 02:46 PM

Has anyone had any trouble getting a Kaiser flu shot...getting the flu from it.  It is a live virus..


Diagnosed 3/2014 WBC 28 Non detectable within 3 monthsGleevec 400 mg 5/2014 one hour after dinner really improves nausea300 mg 12/15/2016200 mg and 300 mg Gleevec 2/25/2017 (after 3 years on Gleevec) For last four months taking 300 mg per day. Last CMC showed liver enzymes elevated, went to a good Naturopath and he recommended 4 Tumeric, 10,000 mg Vitamen D, and 3 milk thistle (silymarin) daily. Also use One<p>Day Detox Dandeloin tea, and Nettle Tea and a slice of ginger every day...in two months liver tests were below normal.Janis

#2 hannibellemo

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Posted 03 November 2015 - 02:55 PM

The injectible vaccine is NOT a live virus, the nasal mist is, but even it is modified. 

 

http://share.kaiserp...t-the-flu-shot/


Pat

 

"You can't change the direction of the wind but you can adjust your sails."

DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>


#3 Gail's

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Posted 03 November 2015 - 08:49 PM

Finally, this year the consent form lists mild flu like symptoms as a side effect of the vaccine. I've been horribly sick twice after getting the flu sho until last year when the inactivated flu shot called Fluvirin was used. But yes, even with inactivated vaccines your immune system is challenged and you can get symptoms. I get my vaccines at Kaiser.
Diagnosed 1/15/15
FISH 92%
BMB 9:22 translocation
1/19/15 began 400 mg gleevec
1/22/15 bcr 37.2 IS
2/6/15 bcr 12.5 IS
3/26/15 bcr 10.3 IS
6/29/15 bcr 7.5 IS
9/24/15 bcr 0.8 IS
1/4/16 bcr 0.3 IS
Started 100 mg dasatinib, mutation analysis negative
4/20/16 bcr 0.03 IS
8/8/16 bcr 0.007 IS
12/6/16 bcr 0.002 IS
Lowered dasatinib to 70 mg
4/10/17 bcr 0.001 IS
Lowered dasatinib to 50 mg
7/5/17 bcr 0.004 IS
8/10/17 bcr 0.001. Stopped TKI in prep for September surgery.
9/10/17 bcr 0.006
10/10/17 bcr 0.088

#4 RayT

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Posted 04 November 2015 - 07:06 AM

I am a paramedic who worked as a state public health dept regulator for 22 years. It is IMPOSSIBLE to get the flu from the injected flu vaccine. The vaccine contains only a partial protein of a dead virus. It's akin to saying you can sever a human body in half at the abdomen and make the just the pelvis/leg section come back to life. Flu mist, as previously mentioned, IS a live weakened virus that should not be given to immunocompromised individuals. You should also be up-to-date on pneumonia and HiB vaccines. As much as I hate needles, the pain of the shot is MUCH less than the pain of my hem/on finding out I didn't get my vaccination. Yes, you can get the flu after getting the shot (I did last year,) but that's because the vaccine isn't 100% effective. The mild flu-like symptoms that MAY occur in a small number of people is just the body's reaction while it's building immunity to the actual flu virus. My spleen was removed in 1982, so flu/staph/strep infections can be fatal (up to 40% mortality) for me. That statistic provides me with ample motivation to get vaccinated.

#5 RayT

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Posted 04 November 2015 - 07:18 AM

I forgot to mention that you are UNPROTECTED from the flu until 1-2 weeks AFTER being vaccinated because it takes that long for your body to build sufficient antibodies.

#6 hannibellemo

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Posted 05 November 2015 - 09:59 AM

RayT,

 

Excellent information, thanks. What are your thoughts on the shingles vaccine (I'm 64)? As I posted in another thread, my onc finally said I could get the vaccine. It's unlikely, but I could possibly get shingles, too. Unlikely because I am not immunocompromised.

 

Still on the fence on this one.


Pat

 

"You can't change the direction of the wind but you can adjust your sails."

DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>


#7 Antilogical

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Posted 05 November 2015 - 08:29 PM

Being immunocompromised is not a precondition for getting shingles.  The trigger is unknown.  My parents both had shingles, as did a co-worker.  None were immunocompromised.

 

I vote for getting the vaccine.  Even if you get shingles, it will be a milder case than you would have had if not vaccinated.


Dx: Sudden severe anemia detected 07/2011, followed by WBC spike. CML Dx 02/2012.

Rx: 03/2012-Gleevec400.  Reduced 02/2013 to Gleevec300 due to side effects (low blood counts).

Response: PCR-Und within 7 mo. on G400. Maintained MMR4-MMR4.5 on G300. PCR-Und since 02/2016.


#8 hannibellemo

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Posted 09 November 2015 - 12:58 PM

Thanks, antilogical, good anecdotal information. I found this website to be helpful, too.

 

http://www.medicalne...cles/154912.php


Pat

 

"You can't change the direction of the wind but you can adjust your sails."

DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>


#9 Gail's

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Posted 09 November 2015 - 05:17 PM

Hannibellemo, noticed the portion of the article that refers to those who should not have the vaccinations includes those who have chemo AND those who have blood or bone marrow cancers. How old is this info?
Diagnosed 1/15/15
FISH 92%
BMB 9:22 translocation
1/19/15 began 400 mg gleevec
1/22/15 bcr 37.2 IS
2/6/15 bcr 12.5 IS
3/26/15 bcr 10.3 IS
6/29/15 bcr 7.5 IS
9/24/15 bcr 0.8 IS
1/4/16 bcr 0.3 IS
Started 100 mg dasatinib, mutation analysis negative
4/20/16 bcr 0.03 IS
8/8/16 bcr 0.007 IS
12/6/16 bcr 0.002 IS
Lowered dasatinib to 70 mg
4/10/17 bcr 0.001 IS
Lowered dasatinib to 50 mg
7/5/17 bcr 0.004 IS
8/10/17 bcr 0.001. Stopped TKI in prep for September surgery.
9/10/17 bcr 0.006
10/10/17 bcr 0.088

#10 hannibellemo

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Posted 10 November 2015 - 10:14 AM

Last update, September 2015.

 

Remember, there are many blood cancers that are way more debilitating than CML is now for the majority of us. Even though the current thinking is this is ok for those of us with CML, it is very likely NOT ok for others with acute leukemias and lymphomas and other marrow disorders..


Pat

 

"You can't change the direction of the wind but you can adjust your sails."

DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>





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