Tedsey - In rereading your original post, it sounds to me like you're getting overwhelmed by anxiety. Man, have I ever been there! Trouble is, it works so thoroughly on your head that it messes your body up, and the stuff you "imagine" is brought into "existence." When I get in this fix, besides coming here, the thing that usually helps the most is to actually go to the doctor. I just blurt it all out, trying to sound rational, but for sure I try not to let myself hold back or minimize. The key is to be taken seriously, and that might include some tests. Can someone else carpool your kids to school so you can get that x-ray? Last thing - I have been on 70 mg Sprycel almost from the beginning of taking it four years ago, and although my descent has been turtlish (a word?) it has been steadily downwards. I think you are probably on enough Sprycel to be knocking back the CML. But again, the best way to alleviate all this anxiety is to go in and get some medical attention (and PCR, maybe?)
Yes. Anxiety will rear its ugly head from time to time if not way too often in me. When I get like this, logic just flies out the window. However, I just feel something is wrong. I wish my doctor would call me back! I am overdue for my check up and PCR. Anyway, I called another center. They focus on nutrition which I think may help (promoting vegan and vegetarianism). I have been trying vegan, but then I read an article that some meat is important too, especially fish. Then supplements and vitamins work; they don't work. Organic vs. conventional... Ahhhhhh!
I am going nuts trying to prevent disease. I have come to the conclusion that it is impossible. Our whole medical establishment is not to prevent, but to treat (I mean, I am happy for the successes, namely TKIs, but I want to be cured!). I don't want to be treated! I don't want to get sick or sicker! It is all a farce (with the exception of trying to prevent type 2 Diabetes and some bacterial and viral diseases maybe). And everyone is blaming everyone. Vegetarians on meat-eaters, thin people on overweight people, well people on sick people---the media just loves to find a villain and blame, blame, blame!
Doctors cannot prevent anything! Most things are "wait and see" and often tests show zilch. I guess I am jaded because I had extreme weight loss for 3 years and ran to doctors and all told me I was as healthy as a horse until my WBC came back high at a checkup and my spleen and liver enlarged in a few days! I had no other symptoms. As for a few popular diseases, even pap smears cannot detect ovarian cancers and mammograms miss many. Numbers for prostate cancer may be bogus. You have to wait until you have strange bleeding, lumps or pain before anything can be seen and then it may be too late. I feel so hopeless and deflated. I just want to do what is best to prevent more disease. I do not know how to feed my children in a way so they won't get sick and feel like a monster allowing them treats because sugar is the new enemy, not fat! There is so much conflicting information out there, my head is spinning! The stress of it all will probably be my downfall more than anything I put in my mouth or exercise.
Take care,
Teds
