At diagnosis: Diagnosed with PCR only 123% BCR-ABL1
Reached hematologic response at 1 month after starting TKI (only on the one-month lab)
Reached 0.000% by 3 months and have maintained 0.000% per PCR testing for just under 2 years
WBCs, neutrophils have remained elevated somewhat throughout
Saw a new doc who isn't convinced of my diagnosis (CML, no CML, CML plus polycythemia vera and/or myelofibrosis, etc.)
Options: Stay on TKI, decrease dosage of TKI (side effects), or discontinue TKI, in an effort to loose CMR and monitor frequently via PCR (CMR most often lost within 6 months following TKI discontinuation, per doctor)
I chose to discontinue the TKI with frequent monitoring. IIUC, if I loose MR between now and 6 months, I'll have a BMB, or in 6 months, have a BMB to get a more definitive diagnosis.
Anyway, just waiting to see what happens and thought I'd share my current situation. TKI rash is dissipating. I'd love for my skin to not be so dry. Maybe that will be next.
Hope everyone has a great weekend!